Sacroiliac joint dysfunction - Pelvic Pain Suppo...

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Sacroiliac joint dysfunction

Ian-59 profile image
14 Replies

Hi folks. I have Sacroiliac joint dysfunction which results in episodes of moderate but mostly severe pain in my lower back, either of my hips (but never both together) and radiated pain into my groin. I have access to really good Physiotherapy on the NHS, which is helpful and an assortment of painkillers. Any good treatment or self management suggestions would be most welcome as I am determined to be as mobile as possible. By the way this is complicated further by me having Parkinson's disease.

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Ian-59 profile image
Ian-59
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14 Replies
jointpain profile image
jointpain

I use a sacroiliac belt when mine 'goes' which isn't too often these days. Mostly brought on sometime after climbing a ladder, when bending awkwardly for some reason. I see your name ends in 59, is that your age?

Cardinal profile image
Cardinal in reply tojointpain

Is it okay to wear an s.i. belt when it isn't in the right place? Or at least, does it actually feel better when u wear the belt when it's out? I've always wondered. I had heard it was only to be used to keep it in place.

jointpain profile image
jointpain in reply toCardinal

I wear mine low over my hip joints which helps stop that feeling of being torn in half. Normally after around 48 hrs I can do without it.

Cardinal profile image
Cardinal in reply tojointpain

Good to know. I may try that next time.

blondeedlebug10 profile image
blondeedlebug10 in reply tojointpain

Good for a Band-Aid though is this your discomfort temporarily

blondeedlebug10 profile image
blondeedlebug10 in reply toCardinal

No it is not OK it needs to be adjusted and whatever is causing it needs to be addressed

Cardinal profile image
Cardinal

Yeah, go to a pelvic physiotherapist or one who specializes in "womens health" or s.i. joint dysfunction and they should be able to teach you the moves (MET or Muscle Energy Techniques) to get it back in place.

Ian-59 profile image
Ian-59 in reply toCardinal

I'll look into MET, many thanks.

blondeedlebug10 profile image
blondeedlebug10

What is The cause

Jenniferleigh profile image
Jenniferleigh

Hi guys I have iloinguinal nerve damage, and pudendal. My groin was part of the circle on one side my left. I had fai hip that failed and made my nerves worse? I really want to know if I have this. When I go from laying to standing I feel a couple pops that hurt as there sliding together. Can my pelvic pt have a test for sjd? Also big one has anyone got there iloguinal nerve taken out surgically. I tried everything it needs to go. I wish I new the best surgeons to go too?

KaseyKat profile image
KaseyKat

Ian

I suffered with chronic neuropathic pelvic pain for the past 20years. I developed pudendal neuropathy after a vaginal hysterectomy due to a vaginal cuff abscess. I've tried everything from surgery, medications, nerve blocks, cryosurgery, radio frequency, injections, neurostimulators, & intrathecal pain pump for narcotic medications. I recently received a stem cell pasteinjection into my damaged pudendal nerve area. It has been 17 days since the stem cell paste injection. I only feel pressure, tingling, and mild pelvic spasms. Which my stem cell physician told me that this is normal after a injection. I haven't felt burning pelvic pain since the stem cell paste injection. My physician is the first to treat pudendal neuralgia with stem cell therapy in the U.S & Europe .This stem cell paste can be injected into any disc or joint. Even if there is bulging, herniated, or ruptured completely disc. Even if there is no cartilage in the joint. The stem cells will heal any disc problems. The stem cells will grow new cartilage for that joint. If you would like more information about the stem cell paste injection, please send me a message.

Thebeautyofitall1975 profile image
Thebeautyofitall1975 in reply toKaseyKat

KaseyKat, I would. Thank you!!!

in reply toThebeautyofitall1975

Stem cell treatment is still in its experimental stages. It is not a treatment that is offered in the UK yet. There are no long term studies showing safety or effectiveness as a ‘cure’. And everyone is different with the causes of their pain. We are all complex cases and the is not a ‘one size fits all’ cure. Please be cautious about stem cell treatments and do lots of research. Treatments need to be fully evaluated and regulated with long term outcome, safety, side effects monitoring etc before being offered as a treatment.

Thebeautyofitall1975 profile image
Thebeautyofitall1975 in reply to

I am in the United States, but thank you for the words of caution.

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