I just recently came across 'Health Unlocked' when searching for Chronic Pelvic Pain Syndrome, and found several of the posts helpful, so thought I would share some of my experience with the community in hopes it may help others as reading some of the pots on this forum have helped me.
I am 35 and have been suffering from CPPS for the past 8 years. At first I was diagnosed with chronic non-bacterial prostates, as I am sure many of you have, but as my flare-ups became more frequent, I started to research my condition, and VERY quickly came to believe my condition had little to do with my prostate, and had everything to do with my pelvic floor.
I have had a variety of symptoms over the years, ranging from frequent urination / urgency, to a slight burn / itch when urinating, to a straining feeling in my perineum, testicles, and penis, to spasms in my perineum, to pain / extra sensitivity in my urethra when peeing, to a swollen feeling in my perineum, to tailbone pain, anal itching and swollenness - the list goes on and on. I have been to several doctors, urologists, only to get the same diagnosis - chronic prostate's. Time and time again I was prescribed antibiotics when I didn't need them, and told to monitor / change my diet, etc.
Since taking my treatment into my own hands, I have came across a tremendous amount of online resources, and experts who actually know what it is I am going through, and have real solutions for how to manage my symptoms / dysfunction. I am only now beginning to pursue many of the treatment options I have come across, but peace of mind, and an understanding that I am not alone, and am not dyeing, was the first step.
I recently came across a single website which summarized everything I had read online in one place. This website contains a wealth of knowledge on the topic of CPPS, and the author of the website, Jeff Gibson, has a ton of experience in the space, and in the treatment of CPPS.
I know there is a lot of information out there on this topic, but found this website to be extremely helpful, so I thought I would share. Hopefully you find the information as helpful as I did.
Would love to hear from others about their experience - what worked - what didn't - etc. Be well!