Hi all, I am new to this site and am looking for advice. My story is from 19 to 30 I had 9 surgeries for large ovarian cysts, Endometriosis, and adhesions. I had a full Hysterectomy when I was 26. After More years of pain and many stays in hospital my bowel Consultant invited me to have tea with him and told me the Gynae team had damaged my bowel and bladder and if I wanted to sue them he would write a testament for me. I declined but heaven knows why! Now after years of being on a mix of Oxycontin, Morphine and Tramadol I am still in great pain.
I have recently seen Mr George at The Christie Mcr who says my bowel and bladder is adhered to my pelvic wall , peritoneum and top of vagina and there is nothing they can do as if they operate I will end up with a stoma and in 6 moths time it will be stuck again! I also have to self catheterise several times a day as my bowel doesn't work properly. The nerve endings from my bowel etc have wrapped round the sacral and groin nerves and are excruciating. I cannot have intercourse with my husband as I have Lichen Sclerosus. I also have Fibromyalgia and am registered Disabled. I am 55 and all my adult l have been in hospital and in pain. It is all consuming and am finding it hard to accept I am going to be in this much pain for the rest of my life!
Has anyone got anything I can go back to the Consultant with....anything to help?