Hello everyone
Have been reading about these in several posts on this forum. Sorry I seem to be late to the party!
Recently had an MRI at a Spire hospital in NW after crippling 10/10 pain in S1 and S2 for about three years and loss of bladder function since March this year. “Small” Tarlov seen on this MRI (with contrast) and radiologist recommended to neurologist (Professor Chhetri) that I see a neuro surgeon at Preston Hospital.
Prof Chettri wants me to have nerve conduction studies at Preston before committing to an opinion about whether this is causing the appalling pain. I’m confident that it is. I’ve read the information on Tarlov Cyst Foundation site and my pain meets all criteria. This pain has been variously diagnosed as Piriformis, Sacrolitis and Sciatica. Medial Nerve block recently done but no improvement - pain is worse if anything.
Would welcome any views, comments, experience etc. I don’t know how much longer I can bear this. 😪