I need some advice as to people's experiences of botox and cystoscopies...
I've been offered botox for my pelvic floor pain (at St Mary's Hospital, Paddington) and they also want to check out my bladder 'just to make sure it's okay' by doing a cystoscopy, but I really don't like the sound of the possible side-effects of the latter, e.g. bladder infection and bleeding, which can sometimes become chronic! . I can't make up my mind whether to 'go for it' or not, i.e. the botox. (I think I've almost decided not to have the cystoscopy as their only concern was that they elicited some pain when they put pressure on my urethra during manual examination but, as I also suffer with generalised fibromyalgia - which causes wide-spread muscle pain anyway - I'm not surprised or worried at there being pain when the tissues were pressed hard in that area....although maybe I should be worried?!)
The consultant gynae I saw at St Mary's was Mr Vik Khullar, but I don't know who will be actually administering the botox into my pelvic floor. I was told by Mr Khullar that I have a muscle in constant spasm in my pelvic floor and when he examined me he certainly managed to elicit the burning pain that I experience whenever I sit or stand, which gets worse the longer I stand or sit (with it being especially bad the longer I sit).
I'm really scared that botox might make things worse for me....as at the moment I do get total relief from the pain when I lie down flat in bed. (I think if the botox were to make my pelvic floor hurt while lying down - which would obviously interfere with my sleep - I would rue the day that I ever agree to botox and feel like committing hari kari, especially as I already have such a lot to contend with health-wise, e.g. chronic wide spread muscle pain caused by fibromalgia, chronic fatigue, hypothyroidism, a rectocele and ocular myasthenia gravis.)
My pelvic floor pain came on after using a neuro-stimulation 'kegel' machine with probe (a 'neurotrac' machine). Even though I used it judiciously and there are other factors coming into play, i.e. I am 58 years old and 8 years post-menopausal, have vaginal atrophy and had lost a lot of weight circa the time that my pelvic pain came on with a vengeance, I really think that it was the neuro-stimulation that was the culprit and triggered the pain (over 8 months ago now, so it's now pretty much become chronic). I was using the 'neurotrac' machine with probe because I also suffer with stress and urge urinary incontinence and was told that this was due to weak pelvic floor muscles and that it might help.
Is botox into the pelvic floor and cystoscopy ever done at the same time, from anyone's experience?
Any advice gratefully received.
Thanks in advance to all. (Sorry it's been quite a long one!)