Being treated for suspected PID, ultrasound yesterday was clear of anything nasty and swabs have come back normal today.
I've been having this mild dull pain in my left side for around 5 months now and don't seem any closer to answers!
Anyone been in a similar situation? is it possible this is still PID?
Hello
It could by a pelvic floor problem or an area of overly tight muscles in that area. I have a history of endometriosis on my right side, currently being treated for adenomyosis, overly tight and loose muscles in the pelvis and interstitial cystitis. My gynae consultant picked up on the pelvic floor problem in addition to the other above problems and suggested pelvic relaxation. Unfortunately I wasn't able to have the physio at the endometriosis centre I attend as my GP isn't in the catchment area so decided to go privately and have been going mainly weekly for the last 4.5 months. I did get a lot of pain on my right side near my ovary where the endometriosis was removed but it's likely a combination of factors which have created this problem. The physio said to me it was like a brick wall when she was doing the trigger point release and it isn't completely cured yet but I am feeling better although the weak muscles still need a lot of work.
It might be worth hunting out a women's physio even for a few sessions privately as it isn't overly expensive and you wouldn't have to go weekly. They can also look at other problems contributing to your pain including postural problems/instability in the pelvis etc. I hope that helps and let me know if you need anything
Can I ask does it get better after lying down for awhile, worse being upright?
The pelvic floor problems? Not really tbh although I do find when my pain is worse anyway I get severe lower back and hip pain with some increase in pelvic pain although that's generally the adenomyosis pain. It does depend on what parts of your pelvic floor are affected and if they are tight, loose or a combination. A good women's physio will be able to isolate the ones affected along with an examination
I think pelvic congestion syndrome can cause pain when standing etc although it is seen by many gynaes including specialists in pelvic pain to be a bit controversial as many have visible signs during a lap but no pain. Having said that there are those with endometriosis who are a symptomatic so it's not really clear on why some experience pain whilst others don't. Hope that helps x
True. And true that pelvic congestion remains controversial. When I researched and thought that it was one of my issues my OB said it doesn't exist. However I went to an interventional radiologist and said do a venogram please. He didn't want to because he'd only seen it presented in males.(visible externally in testicles) I said I wanted him to do it so he did reluctantly. He made sure I was strapped to a table in an upright position, Put that dye in and what do you know, neither of my ovarian veins were functioning at all! They were as big as his thumb he said. And on the screen you normally would not be able to see them. He was dumbfounded. Probably been that way many many years to do that much. The valves in the veins were not pumping blood back to my heart and it was pooling in the pelvis. I had some relief after he embolized the veins but that was not the end of my problems. And who knows if the pelvic congestion started the other things like PNE, or vice versa.
My lesson from this was don't always listen to your doctor and be your own advocate. I fired my OB and looked for one more humble, open, and progressive. And I forced that IR to do a scan he didn't want to do. Because I knew my body and I had researched so much, so long, I knew my own diagnosis. Easy fix to all my problems?, no....But a piece of the puzzle that gave me some relief and got me closer.
Yeah, waking around seems to make it worse, but even sitting sometimes bring on the pain but laying down I do feel a lot better.
Had ultrasounds on Sunday and there was nothing really to report, other than I have a less mobile left ovary which she said could indicate adhesions?
Adhesions can definitely cause pain. Been there. But if it does get worse walking and sitting, lessens when you put your feet up look into pelvic congestion. That was the case with me. Found a good interventional radiologist who did a venogram. Research it. It's one that most doctors don't catch. I just wrote a long post about my pelvic congestion experience. I had to diagnose myself because many doctors don't know or don't believe. Good luck. Keep fighting.
PID. (Pelvic Inflammatory Disease)
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PID ‘diagnosis’ 
Pelvic Pain, PID, Pelvic Inflammatory Disease, Frequent Urination
Pelvic inflammatory disease
