Morning all, two weeks ago my consultant told me I have PBC. I had visited my GP in Dec with something not right with my tummy. Im a long standing sufferer of IBS and for weeks had not felt right. Was also suffering major palpitations. Following routine bloods some of my enzymes were risen . Repeats show further escalations and an ultrasound which was ok at which point I was refered to hospital. I also have been suffering with exhaustion. The consultant asked usuals questions how much do you drink, what tablets take etc etc. he carried out raft of blood tests (about 17 in all). I went back 2 weeks ago for results. He told me I have Gilbert's which runs only family but more so that tests conclude I have pbc. Shocked was an understatement. He said I need to have biopsy to stage illness. I asked what if biopsy said it wasn't pbc, he said he would be extremely surprised if it wasnt! Ihe was adament it is. I was so surprised with results I didn't ask half the questions I should have. My head is all over the place. This site and members comments and experiences have been so helpful. I am a female, 39 years old and have no idea what to now expect. my concern is that consultant has said I will be on medication daily rest of life and 3 mthly hospital checks ups which is fine , but worried as I have read the illness cant be stopped just progression slowed and in some cases for only between 10-15 years. I know everyone is different and what the worse case scenario is. Just interested to here how others cope and what things you might have changed to help with the condition. Also I had h Pylori five years ago and wondered if there was a trigger here. Research I've read on here suggest there might, anyone else had HP? Thanks
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.