Haven't posted in a long time. Dx with Pbc 8 months ago and been on urso 7 months. Bloods have gone back to normal.
My mind, soul and body have not since learning about this disease.
I worry consistently. Driving myself insane. I have the support of my husband and daughters. However my Mother, sisters and nieces seem to think it's slow to progress there fore nothing wrong with me!
I suffer with pain in the liver area and back pain. Stiffness and ache in the bones at times. Also fatigue. This is the worst of them all. I'm lucky at the moment I can stay home. My husband is USAF/DOD and I'm British and been very lucky to be stationed back here in UK for another 2 years. I'm loving it but know will have to move back.
I haven't seen any hepatologist yet. The military are maintaining it with urso and blood work and scan very six months. I think it's time I should see one? Wonder if it's worth me signing back up for the NHS?
I'm scared, worrying and honestly don't know what direction to turn in. I'm now changing my diet habits. Low fat high fiber.
I'm not looking for sympathy from mother etc but acknowledge it. It is real.
Any advise my sisters would help greatly.
Hugs and love. X