Do you feel your liver?

[JessiG19]

Ever since this all started I can feel my liver now. Not like a pain or anything. It kinda feels like your stomach when you get a hungry.

Is this normal?

[Cstar1079]

I don’t know if it’s normal or not I can feel mine too. I also sometimes have pain in it, get a swollen feeling in it, and pressure even.

[iagra]

Sometimes I feel prickles, sometimes just the feel of something is there, no pain. But, it doesn't resemble the sensation of the "hungry" stomach. I had it for several years. Have been diagnosed with PBC since 2016.

[magst]

Hungry liver! ,😀I have to admit sometimes I feel like a slight stitch in the right side. I wonder how much of it is psychological. My doctor said I should not feel it. When I eat a lot of fatty foods (health fats) I definitely feel it, like a congestion, the stitch, very full feeling and I can almost taste the fat. I tried keto diet for a few days incorporated bullet proof coffee and it's a no-no for me. Lots of fruit and veg and mostly plant based whole food diet seems the best for me.

How advanced are you? I don't think my one is progressed stage, only on 500 mg urso and got find out early by a random liver function test. No symptoms.

I'm so puzzled by this disease.

[JessiG19 in reply to magst]

I’m still in the diagnosis stage. It’s hard not knowing. The dr doesn’t want me to start meds until I have biopsy. I think that’s an invasive test when there are other test that can be done.

[Nellies47 in reply to JessiG19]

Maybe talk to the pbc foundation re diagnosis for pbc. Biopsy not always necessary.

[Stub007 in reply to JessiG19]

I had a biopsy two years ago last February here in southeastern NC, and it was no big deal. I have just turned eighty at the time. Today I did sixteen miles on my bicycle, which is about what I ride six days a week. I feel fine.I think you will, also.

Don

[Shulsey]

My heptologist from IU University Hospital explained it as being not the actual liver that you're feeling. It's the sack around your liver that has feeling. I get pain when I eat certain foods or whatnot. Mine has to do with my liver being swollen so then the sack around it has pressure. It's normal with PBC

[JessiG19 in reply to Shulsey]

Thank you for explaining that to me. Bc I never felt it like this before. I had phantom pains when my gallbladder came out but this is different for sure

[pbcgirl]

I occasionally feel a throbbing in my liver. It was unsettling at first but I’ve gotten used to it.

[Turquoise2075]

I have a pretty much continuous sensation of a stitch in the area of my liver which I can feel through to my back. I was feeling this a year and a half before I was diagnosed but had no idea what it was. If I go through a period of significant stress I've noticed the stitch sensation turning into a more significant pain which lessens again once the stress has passed. I don't have the hungry feeling that you describe though. It seems it can vary from person to person.

[JessiG19 in reply to Turquoise2075]

A “stitch “ feeling is a great description for it too. Because when I read that it made perfect sense. I can totally relate to how that actually feels.

[Deasimjay]

Hi Jess l am 69 and l can feel my liver as you describe. I imagine a lot of us can. Also we are super aware of the liver.

Mention it to your specialist next visit but l don't think it is to much to worry about.

I know you are young and probably busy but do you find time for some meditation and concentrate on that area . Sometimes l find the mind will move along this way and l guess things flow a bit better.

All the best and much love to you Jess.

[JessiG19 in reply to Deasimjay]

Thank you for your reply. I have a follow up in December with the GI. They’re going to do repeat labs on the liver. I have so may different anti bodies going on. The dr wants to make sure my AMA-m2 test isn’t a false positive along with my AnA specific test.

In my heart I feel that it’s PBC. Just with how fatigue I am and joint pain and being able to feel my liver. I never could before. So something is going on for sure.

[ninjagirlwebb]

I feel the stitch right under my right breastbone every now and then. I have mentioned it to my doctor but he really doesn't know why. It sometimes feels like I pulled a muscle or something. I let him know just for the record.