Pbc/Aih: Well people I'm off to see my... - PBC Foundation

PBC Foundation

9,480 members8,349 posts

Pbc/Aih

janine541 profile image
11 Replies

Well people I'm off to see my consultant at st james today to find a new treatment as I had to stop my ursalic acid due to unbearable itching.

Although after being off it 2 months the itch is as unbearable as ever it only stopped for 4 week

Hope everyone else is ok

Written by
janine541 profile image
janine541
To view profiles and participate in discussions please or .
11 Replies

Hi

Good luck with your appointment . Please let me know how you get on. Love and hugs Lynne xxxx

janine541 profile image
janine541 in reply to

Thankyou I will. Dont hold much hope. They tell you what you want to hear sometimes

in reply tojanine541

Is anyone going with you? Also, write anything down that you need to ask and don't leave until you have answers, write the replies down. Will be thinking of you. Love and hugs Lynne xxxx

janine541 profile image
janine541 in reply to

Hi my dad is coming with me hes a retired nurse so he sort of understands most things

in reply tojanine541

That's good xxxx

janine541 profile image
janine541 in reply to

All went well. Got some powders to try for the itch

in reply tojanine541

Hi

I hope they work and you get some relief from it. Love and hugs Lynne xxxx

butterflyEi profile image
butterflyEi in reply tojanine541

Only just picked up this thread. Guessing the powders are Questran or Questran light. I found they were best taken in kefir but before I discovered that I took it in a thick juice like mango and orange. Also the wisdom from The Foundation some years ago was to take on sachet before breakfast and one after . It does take a time to fet into the system. They worked in part for me but I also have rifampicin and sertraline now. Hope it works okay.

janine541 profile image
janine541 in reply tobutterflyEi

Hi I took one in milk last night and it was fine but not felt the benefit as yet the itch is unbearable still

Cathycomehome profile image
Cathycomehome in reply tojanine541

Hope all goes well for you xx

Knackeredknowle profile image
Knackeredknowle

Stay strong, we all here for you x

Not what you're looking for?

You may also like...

Pbc/Aih

Hope everybody is ok. Im week 4 on eatting healthy and feeling so much better. Hope everybody else...
janine541 profile image

Pbc/Aih

Hi everyone Has anyone not taken ursal for their pbc and just eaten healthy and exercised. Awaiting...
janine541 profile image

Pbc/Aih

Went to see my consultant and now need a bone test for a diagnosis. He said i may need to see...
janine541 profile image

Pbc/Aih

Well awake again. After my 7 day trial of pills from my doctor. 2 days off and im itching all over...
janine541 profile image

Pbc/Aih

Well last day off to day it has been great. Although wish i could sleep at night. Does any body...
janine541 profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.