Hair Color : I know there was a discussion a... - PBC Foundation

PBC Foundation

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Hair Color

gwillistexas profile image
35 Replies

I know there was a discussion a long while back about coloring our hair. Are any of you coloring? Gray is driving me crazy🙃

Gail 🦋

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gwillistexas profile image
gwillistexas
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35 Replies
boneytoys profile image
boneytoys

I’ve been colouring my hair for 30 years

I have been diagnosed with pbc 10 years

I’m not ready to stop yet

I’ve read the conjecture but there is no proof the colouring your hair is a factor for triggering pbc as far as I know

butterflyEi profile image
butterflyEi

I highlight mine well what is left of it. With foils the product does not touch the skin so I am told. 😊

S2k0 profile image
S2k0

Hi I colour my hair have done for some years. It would really get me down if I didn't. We must still live our lives and be happy and if that means getting rid of the greys do it. 😀

Alisonsewsalot profile image
Alisonsewsalot

Just to be on the safe side I have foils to highlight my hair. My hairdresser does her best so that no dye is touching my scalp.

kingsnorth profile image
kingsnorth

Hi l have foils so the colour doesn’t touch my scalp I have lots of grey hair as well. I used to have a full head colour at the hairdressers but for some reason l became allergic to all the products and my scalp started to burn and itch so now my hairdresser uses foils which l love. I personally would not buy products off the shelf and colour it myself

GhostHunter profile image
GhostHunter

I let my hair grow out when I was diagnosed with PBC, however, my hair is completely gray now. I have done so much research on this particular issue. I believe the reason we are not supposed to color our hair is our liver struggles to filter out the poison which gets soaked into our scalp. I did find a product called “Naturtint” sold through Amazon, which is supposed to be ALL natural ingredients. I have not tried it yet, but I am going to. I already ordered it.

gwillistexas profile image
gwillistexas in reply to GhostHunter

GhostHunter...Thank you. That is the main reason I haven’t colored. I read a post on another group about it also. One lady said she noticed her labs were elevated afterwards. I think I won’t chance it. 😊

Jacqui0112 profile image
Jacqui0112

Go for it!

LindaVillanova profile image
LindaVillanova

Yes I still colour and will do until I’m ready to go all grey- for a change of style not because of pbc. My hairdresser gets in a healthier more natural dye - ask your hairdresser to research product for you.

4pjx__ profile image
4pjx__

Some time back one of the ladies had an appointment at the May Clinic. She asked them about coloring her hair and they said it was okay. Personally, I have let my hair go more because my hair was getting fried and it was so expensive. I've been trying to save a little here and there because retirement is coming up soon. I got lucky, people say it looks good. If it didn't I would probably start coloring it again. I noticed it didn't really make any difference on my lft's. This disease does enough to us in an emotional way. You can't go around feeling like you don't look good.

Pam

gwillistexas profile image
gwillistexas

4pjx...my gray doesn’t really make me feel bad about myself. I have a little more gray at the front but all else blends nicely. My gray is soft & I have blue eyes so not that bad. I try to keep a nice cut which helps. There’s just something about gray hair on a pink scalp 😆

liver-bird profile image
liver-bird

I did stop using nail polish as it makes little difference to my appearance. However when i tried going grey, it was not a nice grey and put about 10 years on me. So I decided to continue colouring. I reasoned it is an unproven theory anyway ☺☺

gwillistexas profile image
gwillistexas in reply to liver-bird

liver-bird... do you do it yourself or at a salon? Does it affect your labs?

mrspeffer profile image
mrspeffer in reply to liver-bird

I have been using some of the different 5 and 8 free polished. Love Butter London brand and Julep . Cheaper on eBay and beautiful. Suppose to be safe

liver-bird profile image
liver-bird

I do it myself with Nice and Easy about every two months. My labs reduced when I went on urso about 5 years ago and have stayed down. There are 4 people in my family with PBC so I think it's genetic

gwillistexas profile image
gwillistexas in reply to liver-bird

liver-bird...Thank you. I’m going to ask hep when I see him just out of curiosity.

liver-bird profile image
liver-bird

Me too ☺

kiwivivr profile image
kiwivivr

For about 25 years I coloured my hair myself at home, using Nice and Easy , or Garnier. diagnosed with pbc 2 years ago and found the colour was just not holding. Rather than colouring every three weeks I've decided to flag it. I started a new job so it was a new start new look and my hair is white.

I think it looks ok One of my friends that hadn't seen me for a while complimented me and asked me how and where I got my hair done, so I laughed and told her it's actually undone.

gwillistexas profile image
gwillistexas in reply to kiwivivr

That’s a nice compliment 😊. I told the girl who cuts my hair I was thinking about coloring ( last year). She said no, women are paying to have their hair your color. So I left it alone. 😊

kiwivivr profile image
kiwivivr

Lol. Bonus

saarima profile image
saarima

I use colour named Elumen - they say it is healthier than other colours. Perhaps...

Candy12 profile image
Candy12

Still colour mine at home, but If the theory of hair dye, nail varnish or cosmetics ever becoming the cause then I would stop. My own theroy is this, I am of 10, all the girls 5, use all the products I’am the only one with PBC. No other family members now or past have had it diagnosed either. So I’am a wait and see... we breathe in chemicals every day in our environment, I worked in a petroleum station many years ago was that petrol the trigger we breathe it when we fill our cars so I’am not going to panic over haute dye yet.

gwillistexas profile image
gwillistexas in reply to Candy12

Candy12... I never thought it caused PBC, I just didn’t know if the chemicals were too hard on the liver. Thanks so much😊

Candy12 profile image
Candy12 in reply to gwillistexas

AH Sorry my misunderstanding or presumption of your particular concern. A lot of people are/were concerned about the chemicals in those products causing pbc, when there was a lot of reasearch into them suggesting chemicals could be the environmental trigger.

cazer profile image
cazer

I had never coloured my hair when I first got pbc... X

As your question is "any of you colouring?" I have to say - no, I don't colour my white/gray hair but may I ask you, are you sure it is the gray that's driving you crazy? May you just want to make a radical reaction to a change that you didn't choose? That may be the first question to ask yourself. It could save you money and time? You are perfect as you are. If you decide to color, that will be fine too. It is lovely to be free to choose? Your hair looked lovely in your Christmas good wishes pic here. I'm sure it always will look beautiful whatever you choose. My hep inferred that people who had longtime been dying hair is a group that seems to have higher incidence of PBC. I have never searched or seen any evidence of that. Seems likely to me that since most women are diagnosed when they would naturally be gray, and most women colour gray hair, that they would be the group most likely to have PBC!! :-)

Lowestoft1956 profile image
Lowestoft1956

I have always coloured my hair as not yet ready to go grey. My consultant has not suggested that I should stop using hair colour so will continue to do so.

gwillistexas profile image
gwillistexas in reply to Lowestoft1956

My aunt uses Fanciful Bashful Blonde It’s pretty. Only thing is it washes out each time. That could be a pain. Thanks for the info 😊

Danteskid profile image
Danteskid

I do....not ready to give that up! I feel like it’s the only thing keeping me even slightly young looking. 😉

gwillistexas profile image
gwillistexas in reply to Danteskid

Does make us feel better☺️

Nolagh profile image
Nolagh

I was diagnosed 6 years ago and have always colored my hair, no problems with doing it.

gwillistexas profile image
gwillistexas in reply to Nolagh

Thanks. Do you color it yourself or have it done?

Nolagh profile image
Nolagh

I actually have it done at a salon and I have my nails done probably 2x a month. I’m a pediatric nurse, I work 4 10 hr days. I am 60 years old,

gwillistexas profile image
gwillistexas in reply to Nolagh

That’s a rewarding job. Sweet children. It’s great you’re still feeling well enough to work those long hours. I’m 64 but not sure I could handle 4-10’s, lol! I have lots of energy but that’s long days. I still work 40 hrs. 😊

Nolagh profile image
Nolagh

Good for you, I think keeping busy helps. Take care of yourself!

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