Scotland bound....

[DonnaBoll]

I'll be leaving for The International PBC Summit in Edinburgh this Friday afternoon. I will return late on April 13th.

I am excited to meet some interesting experts in the field, hearing what they say about what's going on with PBC research and new thoughts about it. I know last year Dr. David Jones was there.

Last year I spent a whole day listening to several pharmaceutical companies present what they are working on for us.... for the itch, the brain fog, and the fatigue. One company even mentioned the word "cure"! One company felt strongly it was a 'blood- brain' barrier disconnect that causes PBC. I'm anxious to see if they have made more strides with this theory.

Not sure how often I will be able to post here as I will only be using my phone. I will do my best to keep tabs on the group.

Just wanted to let you know what's happening for me. Looking forward to bringing you some hopeful news when I return.

[4pjx__]

Have a great trip!

[Samanthaann]

thank you Donna for representing all of us. I hope you have a great trip and find sometime to do some fun things! 🙂

[nan1012]

Enjoy your trip - hope you have time to see some of Scotland!

[DebatDG9]

wishing you a safe journey, Donna and looking forward to hearing your feedback. I’m jealous of you being able to attend the conference. I live in SW Scotland but have a husband with Alzheimer’s and unable to travel.💋

[DonnaBoll Administrator in reply to DebatDG9]

I'm so sorry to hear that. Wish we could meet someday .....

[butterflyEi]

I look forward to hearing all about your experiences. Have a great time.

[Cascade35]

I hope you have a great trip and I’m sure we all look forward to reading what you post on what you learn. Safe travels

[54TiredGirl]

Safe travels!

[Wocket]

You must be bringing better weather because today is the first day without rain for ages but my advice is to bring a waterproof coat😂 Hope we find time to meet for a coffee😃

[DonnaBoll Administrator in reply to Wocket]

Saw they were forecasting rain almost parts of everyday. Last year there was not a drop of rain the whole time I was there. Being in the hotel for 4 of the days helps... I will see if meeting works out and reach out to you.

[Wocket in reply to DonnaBoll]

I realise you will probably be very busy so I won’t be offended if you can’t fit it in. 😀

[DonnaBoll Administrator in reply to Wocket]

Do you have anytime today to meet at hotel for coffee or tea? I'm free most of day.

[Wocket in reply to DonnaBoll]

Yes I’m free this afternoon. What hotel are you staying at?

[DonnaBoll Administrator in reply to Wocket]

I am at the Delta Marriott. What time?

[Danteskid]

Have a safe and wonderful journey! Can’t wait to hear all about the new and exciting things you learn! Much love to you! Jackie

[PhyllisL]

Thank you for representing your fellow PBC community! We hope for some good news! Safe travels.

[S1LK]

Have a great trip Donna! So happy for you. Wish we could be there! Would love to meet Robert and Dr. Jones! We are flying in a few days after you leave. Would be nice to be able to meet up with you for a drink (no, not whiskey 😄)and hear all about your experience!

Safe travels!

[DonnaBoll Administrator in reply to S1LK]

You should stop in to The PBC Foundation office and meet Robert!

[lovesoccer]

So excited that you’re going!

[boneytoys]

travel well and safe. We know you will ve thinking of us in relation to PBC and we are grateful for your care . Xx

[CeeJay56]

Safe travels! Hoping you have a chance to enjoy a bit of spring in Edinburgh!

I will be following and interested in hearing results on the rumored cures and any info on treatment for those of us with AIH or other overlapping conditions.

Thanks for sharing.

[Beatrice110924]

Hi DonnaHope you have a productive time .

I've had PBC for 12 yes now AIH overlap and cirrhosis.

I don't know whether they discuss cirrhosis but there's a new trial using Macrophage immune cells.

Prof Stuart Forbes who is based in Scotland and I'm interested if David Jones or any of the experts know about this.

Maybe you won't be able to ask but there doesn't seem to be much advice once you've reached compensated Cirrhosis.

[DonnaBoll Administrator in reply to Beatrice110924]

I wrote the information down. Will see what I can find out in next few days .

[Beatrice110924]

Thank you. Enjoy