Crawling feeling on right side of my head - PBC Foundation

PBC Foundation

9,465 members8,260 posts

Crawling feeling on right side of my head

Mg40 profile image
Mg40
6 Replies

Sometimes I have this feeling that something is crawling under my skin on my head. Same spot and don’t know what triggers it. I have stage one PBC since 2011. I am on Urso and OCaliva. My itch and fatigue are in control but Since last year I got this creepy thing. Has anyone experienced this?

Written by
Mg40 profile image
Mg40
To view profiles and participate in discussions please or .
Read more about...
6 Replies
butterflyEi profile image
butterflyEi

I have something similar across the bottom half of my face around the jaw line it is as if the nerve endings are crawling but not like insects on the skin. I am medicated for the so called itch of PBC and I am sure the sensation that I still have would be worse on my face were it not for the cocktail of drugs.

best wishes

Lizzy1313 profile image
Lizzy1313

Hi Mg40,

I also have that creepy crawly feeling on my head. It comes and goes. Was especially bad when my children were in elementary school with all the lice outbreaks LOL! At the time, I thought it was my imagination, now it seems be just how things are. Sorry I don't have any solutions.

Liz

Mg40 profile image
Mg40 in reply to Lizzy1313

My creepy feelings were also strong when my daughter was in elementary LOL. Now it’s once in a while but at the same spot.

Lizzy1313 profile image
Lizzy1313 in reply to Mg40

I just remembered that the area I get the sensations on my head is on the gall bladder meridian. I haven't been doing acupuncture as much as I used to? But when I did, it would help.

lesmacj profile image
lesmacj

Hi I am experiencing the same thing. A "phantom" crawling feeling started about a week ago on my left back upper thigh. I was diagnosed a year and a half ago and am taking 4 Urso a day. Still very tired and terribly itchy.

Pamela4475 profile image
Pamela4475

I have had it too..... it is creepy crawly feeling but my md said probably a nerve thing

Not what you're looking for?

You may also like...

Pain on my right side

I'm a 59 year old women having just been diagnosed with stage one pbc. I started taking ursodiol...

That twingey feeling on the right side

It’s normal to have twingey liver pain right? Been having it all week. Pbc stage “1”. My doctor...

Pain in right side.

I was diagnosed with PBC September 2011, but my symptoms have increased over the last year. I have...

Enlarged right side

Has anyone ever had this problem? It is not really my abdomen but more my side between my stomach...

Pain in upper right side

Just have a question for anyone experiencing symptoms of pbc I was diagnosed in June of this year...