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Ocaliva
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Experiences with urso, ocaliva and bezafibrate
I was just curious about your experiences taking a combination of udca,
ocaliva
10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
I was just curious about your experiences taking a combination of udca,
ocaliva
10 mg and bezafibrates. Does it improve the itching? Did you notice any unwanted side effect from bezafibrate, e.g. in kidneys? Thanks for sharing and stay healthy and motivated!
nickey8
in
PBC Foundation
1 month ago
OCALIVA
Anyone is taking
OCALIVA
in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned
OCALIVA
. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
Anyone is taking
OCALIVA
in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned
OCALIVA
. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
iagra
in
PBC Foundation
6 months ago
OCALIVA
Anyone is taking
OCALIVA
in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned
OCALIVA
. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
Anyone is taking
OCALIVA
in addition to Ursodiol to lower ALP? Does it work? Do you have any side-effects? How long have you been taking it? My ALP jump quite a bit and my doctor mentioned
OCALIVA
. I don't like what I read about the side-effects. I'd appreciate your input. Thanks!
iagra
in
PBCers Organization
6 months ago
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Urso stopped working
hi everyone Can anyone help Urso has stopped working and being put onto
Ocaliva
. i have been on Urso since diagnosed in 2012. Not sure what to expect ?? Thank you
hi everyone Can anyone help Urso has stopped working and being put onto
Ocaliva
. i have been on Urso since diagnosed in 2012. Not sure what to expect ?? Thank you
MrsFlee
in
PBC Foundation
6 months ago
Obeticholic Acid..weight gain
Has anyone noticed weight gain or not being able to lose weight since taking
Ocaliva
(Obeticholic Acid) please?
Has anyone noticed weight gain or not being able to lose weight since taking
Ocaliva
(Obeticholic Acid) please?
Oludeniz2017
in
British Liver Trust
8 months ago
What if?
No time is wasted taking nothing besides their Urso or
Ocaliva
. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
No time is wasted taking nothing besides their Urso or
Ocaliva
. Every patient deserves equal chance of benefiting from a new drug potentially. Any thoughts on this? The lobbying of the pharmacuetical companies is crucial for this to happen. The PBC Foundation is committed to make this happen!
DonnaBoll
Administrator
in
PBC Foundation
8 days ago
Seladelpar update
The IL-31, I mentioned earlier that causes the itch was increased with patients taking
Ocaliva
. 96% of those in the trial agreed to continue to the long term research. [u][i]
The very best news in their presentation about Seladelpar was that they are hoping to have it on the market 8/14/2024!!!!
The IL-31, I mentioned earlier that causes the itch was increased with patients taking
Ocaliva
. 96% of those in the trial agreed to continue to the long term research. [u][i]
The very best news in their presentation about Seladelpar was that they are hoping to have it on the market 8/14/2024!!!!
DonnaBoll
Administrator
in
PBC Foundation
5 days ago
another pharma update
Those on
Ocaliva
, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them. They saw decreased alk phos and bilirubin. 51% had decreased alk phos after 1 year. 15% had completely normal lab results.
Those on
Ocaliva
, greater than 50% don't see an improvement. 161 people were trialed. There was a placebo group used for half of them. They saw decreased alk phos and bilirubin. 51% had decreased alk phos after 1 year. 15% had completely normal lab results.
DonnaBoll
Administrator
in
PBC Foundation
2 days ago
Alkaline phosphatase is 161
Pbc, they put me on
ocaliva
earlier this year along with urso, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Pbc, they put me on
ocaliva
earlier this year along with urso, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Dunks72
in
PBC Foundation
11 months ago
update
So I suppose
Ocaliva
has worked wonders in my case. Stage 2 fibrosis at diagnosis in 2017 so it has decreased a little. happy to say I’m at ease now. I’ll definitely stick with my regular hepatologist.
So I suppose
Ocaliva
has worked wonders in my case. Stage 2 fibrosis at diagnosis in 2017 so it has decreased a little. happy to say I’m at ease now. I’ll definitely stick with my regular hepatologist.
gwillistexas
in
PBC Foundation
10 months ago
ALP and when to add 2nd line therapy
So my specialist wanted to add
ocaliva
. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying my numbers will lower without another med. Then I saw many take fenofibrate instead so I was curious as my doc did not mention it as an option.
So my specialist wanted to add
ocaliva
. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying my numbers will lower without another med. Then I saw many take fenofibrate instead so I was curious as my doc did not mention it as an option.
Heaslea
in
PBC Foundation
11 months ago
ocaliva
I was prescribed it for a short time and my consultant had to seek permission as cost about £10,000 for a year’s supply in the UK. It didn’t work so tried betafibrates and they did - a fraction of the cost!
I was prescribed it for a short time and my consultant had to seek permission as cost about £10,000 for a year’s supply in the UK. It didn’t work so tried betafibrates and they did - a fraction of the cost!
Gioielli5
in
PBC Foundation
1 year ago
Cost of Ocaliva
Anyone knows what's the cost of
Ocaliva
in the US? I heard that it is extremely expensive. Thank you.
Anyone knows what's the cost of
Ocaliva
in the US? I heard that it is extremely expensive. Thank you.
iagra
in
PBCers Organization
1 year ago
Cost of Ocaliva
Anyone knows what is the real cost of
Ocaliva
? I looked at GoodRX, in the US, and it is $9000 for 30 pills (5mg). Wow. Thanks.
Anyone knows what is the real cost of
Ocaliva
? I looked at GoodRX, in the US, and it is $9000 for 30 pills (5mg). Wow. Thanks.
iagra
in
PBC Foundation
1 year ago
PBC and also suffering with Pancreatitis
Since then, I have been prescribed
Ocaliva
(Obetecholic acid), has anyone had great results with
Ocaliva
? Also, I have been suffering with bouts of Pancreatitis since 2011 , does anyone know if there is a connection between the two?
Since then, I have been prescribed
Ocaliva
(Obetecholic acid), has anyone had great results with
Ocaliva
? Also, I have been suffering with bouts of Pancreatitis since 2011 , does anyone know if there is a connection between the two?
Michcook54
in
PBC Foundation
1 year ago
Ocaliva
Hi all, I’ve been taking Urso for years and my doctor has decided it’s time to add
Ocaliva
. Does anyone currently take
Ocaliva
in addition to Urso? Has it helped?
Hi all, I’ve been taking Urso for years and my doctor has decided it’s time to add
Ocaliva
. Does anyone currently take
Ocaliva
in addition to Urso? Has it helped?
LKLee
in
British Liver Trust
1 year ago
Constant uti's
Hello everyone Hope you are all as well as you can be . I think I just need a space to talk where people understand and offer valuable advice. I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then
Hello everyone Hope you are all as well as you can be . I think I just need a space to talk where people understand and offer valuable advice. I was diognosed with sle lupus and sjogrens in Dec 22 and was put on hydroxychloroquine plus drops /ointments for eyes artificial saliva ect ect. Since then
Lucylou72
in
LUPUS UK
4 months ago
Bezafibrate and weight gain
I was switched to Bezafibrate when I couldn’t tolerate Urso or
Ocaliva
. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
I was switched to Bezafibrate when I couldn’t tolerate Urso or
Ocaliva
. It’s absolutely fine. However I seem to be gaining weight. Has anyone else had this?
SuziS
in
PBC Foundation
2 years ago
How are you sleeping?
I take Urso,
Ocaliva
, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for long term use with liver disease/cirrhosis.
I take Urso,
Ocaliva
, Prednisone, Salagen and thyroid meds by prescription. I was taking Benadryl a couple days and it was perfect, out like a light. I read Benadryl may not be safe for long term use with liver disease/cirrhosis.
IAmTheGlue
in
PBC Foundation
2 years ago
Does the horrendous dry mouth ever go away with Elvanse - Lisdexamfetamine ??
Hello, I'm another very late diagnosed adult with both ASD & combined ADHD. Following my recent ADHD diagnosis I had hope that my life could improve with medication, however I've been on Lisdexamfetamine (Elvanse) two months now and the dry mouth, and lips are unbearable, I developed tongue sucking
Hello, I'm another very late diagnosed adult with both ASD & combined ADHD. Following my recent ADHD diagnosis I had hope that my life could improve with medication, however I've been on Lisdexamfetamine (Elvanse) two months now and the dry mouth, and lips are unbearable, I developed tongue sucking
RoadTrippin
in
CHADD's Adult ADHD Support
1 year ago
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