Night sweats: Does anybody get really hot of... - PBC Foundation

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Night sweats

kingsnorth profile image
16 Replies

Does anybody get really hot of a night just my body not my face as that is out of the bed its almost like night a menopause) (excuse spelling) but im well over that at 67.

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kingsnorth profile image
kingsnorth
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16 Replies
Jlruggie profile image
Jlruggie

I keep bedroom cold and use blankets I can toss off if I want.

Lizzy1313 profile image
Lizzy1313

Yes! I also keep room cool (even have a fan on low all night) and move blanket around all night. Sometimes helps to drink some water or coconut water when I'm really hot and that helps too. Short sleeves and no socks, for me. I've wondered if it's hormonal, even after menopause, since the liver filters hormones for us. During the summer, I love those cooling pads (best size is for dogs), they require no refrigeration and recool on their own. I keep two by my bed.

in reply to Lizzy1313

Brilliant idea Lizzy1313! Just what I need for me (and my dog!) I hope you are keeping well.

Lizzy1313 profile image
Lizzy1313 in reply to

I just found a cooling matress pad at ikea. I'll check it out to see how it works!

in reply to Lizzy1313

Great idea. I'll see if they have it online. Thanks Lizzy13313

gwillistexas profile image
gwillistexas

I am past hot flashes st 63, thank goodness. I’m sure there could be many explanations as to why you get hot. One in particular is that when the body overheats, it can be a sign of dysfunctional liver. Not sure what stage you are.

martinap profile image
martinap

Yes I had that too especially when taking Urso late and lying down right after it. It improved since I take Urso around 6pm with my last meal and stay up a bit more.

cazer profile image
cazer

yes terribly bad..

. during day and worse at night... im post transplant... and been told it might be prograf...

still none the wiser...

please post if find any answers

cazer

kingsnorth43 profile image
kingsnorth43 in reply to cazer

I don't know what prograf is. I hope you are feeling better after your transplant.

cazer profile image
cazer

sorry... prograf.. tacrolimus is immunosuppression drug taken after transplant. caxer

Emy1313 profile image
Emy1313

Oh dear, I have a problem with severe sweating since I had a complete hysterectomy 24 years ago. I am 63 years old and have been diagnosed by Fibro for34 years, I also take very powerful pain meds (Dilaudid) for bulging vertebrates in my back. I've been told these meds that I take for pain, gout, osteoarthritis, Fibro makes you sweat excessively. I also take Prescription HRT meds which don't help. Also had numerous back surgeries and have a steel rod in my back and I think that may cause excessive heat as well. At night, the sweating is even worse and sometimes wake up totally drenched.

I hope you will find relief Kingsnorth because living like this is hard and uncomfortable.

GrittyReads profile image
GrittyReads

Sadly, the menopause symptoms - particularly flushes - can last for years. Someone on here was still having them 14 years post-menopause. At first, mine were mainly at night, and so bad that I was getting hardly any sleep ... which then caused serious migraines: I was virtually unable to function. My GP recommended amitryptiline, and told me to divide up the 10mg tablets into the smallest dose that worked for me. I soon found that a 1/3 tab allowed me to sleep, but without feeling at all groggy the next day. I still get flushes, about 5 years on, but not so many, not so bad and mainly in the day; however, I still have Amitryp on prescription, and occasionally take 1/6th or even 1/8th of a tablet if I'm having a night-flush phase.

I don't know if flushes are particularly linked to PBC, but I don't actually have PBC (although I may develop it). I just have AMAs, but all annual tests and checks are still consistently clear for PBC - have been since AMAs fists noticed in 1992.

I hope this helps, and that you find a solution soon. Meanwhile, treat and spoil yourself, and fun, do things you love: it might not stop the flushes but it will help with stress, which is bad for both menopause and all autoimmune condtions ... as well as for flushes.

Take care.

Evaibrahim60 profile image
Evaibrahim60

After reading all the replies here I’m not sur What cases that flashes. I had hysterectomy 1995 and didn’t get the flashes till about 15 years after that and I thought my HTR medications are the reason behind it but it didn’t go away after. I have started Urso since 2002 and because of too many side affects I have stopped it for 6 weeks but it didn’t make a difference in the hot flashes part and I get them at any time of day/night also it doesn’t matter if cold or hot weather. It looks like it’s the liver condition since nothing else left to think about where they come from!

GhostHunter profile image
GhostHunter

I just posted something in regard to the correlation between the hot flashes and my immune system going on the attack. I believe when the hot flashes start up that is the point when your immune system is kicking into gear to start attacking something in your body.

I get severe hot flashes, run a low grade fever, tremors, extreme dizziness, and dehydration, then within 15 minutes I get pains in the organs which I believe are under attack. This happens several times a day. When I researched it and it sounded to me like full blown Lupus.

My ANA for SLE which is supposed to be between 1:80 is over 5,500. I did not have all of the markers for SLE test positive a year ago, but I did have half of them.

I have already been diagnosed with PBC and Hashimoto’s, and now I can feel my colon and kidneys under attack. I already have the skin rash issues on my face, and the glands under my right jawbone keep swelling up which sounds like Sjogern’s.

Elsaval profile image
Elsaval

I have been under a lot of stress this last week and I have had night sweats the last three nights. I have PBC and I'm not sure if it's related to the stress or my PBC.

I've had some night sweats recently, out of the blue. I'm 71 and because my feet are always cold, I wear woollen socks, night time as well as day. Sweats have been upper body and head. I hope you have yours under control now? Thanks for post.

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