Hi. I have been dealing with abnormally high liver enzymes for a couple of years now (and since I avoid the doctor like the plague, who knows how long I have really had them), they were found by my insurance provider when I applied for life insurance. I had many blood tests, an ultrasound and MRCP last year to find out what my diagnosis was, and never heard back form the doctor on them, and as I felt fine, figured it was nothing to worry about. I was dealing with my mother in the final stages of cancer and wasn't that worried about my own health.
Now, I have a few symptoms that bother me, I have had a few sleepless nights of my legs and skin being swollen and itchy, almost like hives, but by the morning, nothing; I have been more tired than usual, my face is broken out and my skin texture bumpy, I bruise very easily, (I recently had a small tattoo and it bruised all around it and I have a few tattoos, that has never happened before) and my eyes are dry all the time, but I figured it was because I switched contact brands. These things on their own did not seem unusual, but as I thought about it, together they seemed unusual, so back to my GP I went. I have already had my gallbladder removed a few years ago. She sent me for more blood tests, my liver enzymes are higher now than previous tests, and all the specific tests have come out negative including my AMA, but my doctor seems to think that now that I have had some symptoms that are bothering me, that I probably have PBC. I have a biopsy scheduled June 28th for confirmation, my GP said if PBC is positive she will start meds, as I may have to wait 6 months to a year to see a specialist.
I found this site while researching this disease and I just wanted top say how helpful I have found this information and all of your experiences. I am nervous, my family has had its share of illness and death and I do not want to add my own and some days I feel sorry for myself. I have just lost both of my parents in just over a year and I am the primary caregiver for my 3 year old grand-daughter (the love of my life) and plan to be around long enough to give my children the grief that they have given me back. Now, thanks to your group, I feel hopeful. I know that even if it is not PBC, it is nothing good, all the simple answers have already been ruled out. Fingers crossed for my biopsy, which right now seems like the scariest thing I could ever encounter, it seems risky, but the only way to get my answers. What is biopsy recovery like, will I be sore for days, will I be required to miss more than one days work, these are the questions that I now have.