I was diagnosed with PBC a couple of years ago and have only recently been directed here via my specialist. Having read some of the Blogs on this site has given me a better insight into my condition.
I have been out of work for a while having been sacked by my previous employer, as they said my work was not good enough. I worked in I.T. and In hind site I now realise this was probably due to PBC and my lack of concentration.
I have since been looking for work but am at a loss what to do as I can't concentrate for long periods, I suffer from fatigue and joint problems (Osteopoena), so manual work is out of the question, and I know mentioning it to prospective employer's would be detrimental to them employing me.
I live alone and I find I am spending long hours sleeping due to the fatigue, although I do try to go for regular exercise, but I have had to dramatically cut back on the amount I used to do before PBC due to the post exercise pain.
My social life has dwindle dramatically as it was based around running and cycling clubs, and I try to avoid pubs, and social events that revolve around alcohol.
I'm finding life tough at the moment as I have a mortgage to pay, need a job but find it a struggle to do normal things like shopping/cleaning etc. So don't know how I'll cope if I do get work.
I'd be interested to know what sort of work other people are able to do who have PBC, and whether they have obtained any advise/knowledge from employment advisor's, or changed their career ?.