Funny since my doctor called it PBC before the name using the word cirrhosis. Glad to know there is a place to come and read info and others input. I am scared to death about this and have had symptoms for years that no one could or would look further to find what was the cause. Finally after complaining that I have had elevated Liver functions for about 9 yrs two ultra sounds on my liver not showing a fatty liver. I said, well something is wrong if I have these elevated tests and there must be something else to look at. How simple was the blood test AMA and ANA that my gastroenteroligist finally said we needed to do. Then a liver biopsy, funny how they told me it was to stage it and yet when I asked my doctor what stage he said they didn't stage it. I just picked up my meds Ursodiol today. I am also low on vitamin D and taking large doses, and calcium too. Lately I have been having the worst charlie horses in my thighs (never had that before) so I am happy to have found this site. I also heard that since it seems to run along siblings and usually sisters. Will be telling my sister in a few days she might need to get tested. I originally heard this was not hereditary yet mitochondrial DNA is the maternal line. Mostly found in women of northern european ancestry. It is a very confusing disease. Thanks for being here and listening. Dee
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