I am new here. Not happy about being here! but extremely thankful that there is a forum of others with the same illness I have been feeling very alone and depressed since my bloods last week and my specialist dropped this bombshell on me in a very rough way. Telling me its as "rare as hens teeth" etc etc. I thought I was going to die by Christmas the way he put it to me.
Anyways, I also have Hashimotos Thyroiditis (diagnosed in September) so these last few months have been rather tough for me. I am 37 with children, 5, 8 and 9.
I am struggling with the idea that I am "sick". Hardly ever been sick in my life - even with coughs, colds etc. I always imagined I would lead a lovely long healthy life so this has been a real kick in the guts.
Just wondered how many of you have had liver transplants, or now long it is since you have been diagnosed. And how your health is once you are on any meds? Also anyone else got another autoimmune with the PBC?
Would love to hear from you