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astondb9 profile image
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Hi All,

I have just returned from a week in Greece. The sunshine really did make me feel good! I did not need to use my eye drops after the 2nd day. Now just 24 hours after arriving back in the UK my eyes are itchy and dry! Oh well back to using the eye drops!

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astondb9 profile image
astondb9
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I originally thought that the sun in this country - I'm in UK, yet to leave it! - wasn't doing very much for myself with regards to the itch. I've been a night-time itcher but the year I was diagnosed I did feel the prickles at odd times during the day.

Been taking urso now for two and half years and it is only this year, the last couple months when we have been lucky enough to see some sun. I've actually felt pretty good. Maybe it is due to the absorption of sun through the skin to manufacture internally Vit D. Back in 2010 I did have a reading for Vit D which was on the line just stating I was normal but then 2011 I had a pretty good reading after being in the sun more (never much bothered before, never been a sun-bather).

Maybe the sun that seems constant overseas plays a bigger part. I'd be interested if we have any Europeans living permanently out in Greece and Spain for example who have PBC and who could perhaps contribute for us on here so we can get some variants.

I know my son has a bit of psoriasis on his ankle that he keeps getting plagued with and he has just returned from a week's holiday in Tenerife where he said it was hot (but he is rather like me, overheats a lot) and his skin is pretty much clear for now.

My late first husband, our children and ourselves back in the early 1990's holidayed for a week at Grange-over-Sands, Cumbria and whilst we were there, my husband who was asthmatic was pretty good with regards to the condition but it has been said that there is a mild air out in Grange so that could be the reason there.

astondb9 profile image
astondb9

Like you I am not too keen on sitting out in the sun I usually sit in the shade. But this time I made a point of spending more time in the sun. It definitely made me feel good. Also meant to ask if anyone else with PBC also has to have vitamin B12 injections for the rest of their lives like I do as I cannot absorb it naturally anymore.

witchiegirl profile image
witchiegirl

I've been sitting out these last few weeks, in our Scottish sunshine - It feels strong sun to me!! and I do feel better when I do have a wee sit out, miss it on rainy days.

B12 deficiency is autoimmune and once you've got one AI condition another (or several!) is more likely. I don't have it personally - I understand from others it can take a time to find the right frequency for injections, and towards the end of each injection period the 'drag ass tiredness' can come back. Can you tell my friend who has it from US?!

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