This website is wonderful! Good people sharing good information. When family and friends can't relate or don't understand the symptoms (we all look good!) or are just plain tired of hearing about PBC, we have this community of people to talk to. The only positive thing about being diagnosed with PBC is connecting with all of you! Different people in different countries with different symptoms and yet, we all get along.
Thank YOU for saying what, I believe, most of us feel. -:). Sometimes this is the only place we can "vent" and have people understand what we are going thru. Then on the other side of the coin, it may be the only place non-medical- that we can give and/or receive answers or suggestions (free advice. lol).
I agree with you both. My consultant made light of my condition and my symptoms and I was beginnning to think there must be something else wrong with me! Sometimes I feel like I'm on my last legs! But after read the posts on this site I realise that PBC is responsible and also that my liver consultant isn't the only one like this.
I agree. I felt so lonely before I found this place its wonderful to know there are people out there that feel the same as me. I hope I can help people the way people here have helped me X
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