Pernicious Anaemia Society | HealthUnlocked

Has anyone had very high B12 ? My B12 has been 2000 for years .. I have peripheral neuropathy which I was told 21 years ago was caused by low B12 .. had 12...

Hello All, Browsing the internet (as you do!) and have come across two NHS-issued documents, stating those of us with neurological symptoms should be having...

Hi Guys I need cheering up please. As you know I was dx with PA by my GP in Oct 2022 with a B12 0f 106 ng/L. Vitamin D and folate were also rock bottom....

Like many of us my hair is falling out extremely bad & month been for over 6 months. I nearly have a bald spot on the top back of my head. I just got diagnosed...

Hi all I've just been for my 3 monthly injection only to be told that I might not be able to have them anymore!!! The nurse said that everyone who currently...

For anyone interested, this is a mention of some new thoughts on the impact of nutrition, B12 and homocysteine on dementia. From the authors of What Doctors...

I just wondered if anyone else experienced this. I used to get a B12 jab every 3 months but this was changed due to the fact that in the run up to my next jab...

Hi, friends. Just checking to see if I’m alone or if any of you have found solutions… I’m 34F, diagnosed with PA and IDA at 30. Though fixing my levels took...

I have found someone who understand PA ! My new dentist. I have had PA since 2015 and this is only the second person. The other was a physiotherapist whose...

So i get a B12 injection every 3 months, however my symptoms start to appear roughly 3 weeks before my injection is due,the muscle spasms and generally feeling...

Just wondering if anyone else experiences the need for frequent urination, a short time after self-injecting? I'm finding that within 30 minutes of the...

Hello! I wondered if anybody had any experience with tinnitus and b12 deficiency please? I have hashimotos/ underactive thyroid that is now being successfully...

Has anyone ever been able to find and take an active/functional B12 test anywhere in the USA? It is so frustrating that this test is unavailable in America.

I've had about 10 injections now and things are getting worse. My pain is worse and spreading and no pain killers touch it. Is this really normal for reversing...

Im looking a bit of advice please, last year i was getting b12 injection from the gp every 3 months, the gp tested my b12 and it went very high over 1847 and...

I'm in my early sixties. Generally very good health. On no medication. About twenty five years ago my then brilliant GP did a blood test for B12. A few days...

Hi,I posted recently a bit confused due to ferritin results... March 25th 48 (nhs) 8wks later after loading dose-37 (nhs) 2wks ago 85 (medichecks pinprk) after...

Going from SI every other day to every three--who's done it? And why did you decide to? Was it a successful reduction for you? Did you feel ok and did your...

I met my girlfriend 6 months ago. We have lots in common and are very compatible, in short we get on great together. She was prescribed to take B12...

what do you all think about this article which states serum b12 can be falsely elevated if there is a b2 deficiency which causes inactive cobalomine to result...

Good morning all has been a worrying time for me lately. I have just been through a cancer 2WW for colonoscopy due to high amount of blood in Q-Fit stool...

https://www.youtube.com/watch?v=0JzKmlvIFew

Hi. As previously mentioned, I've been SI 1000mcg Hydroxycobalamin every other day for just under 2 weeks. At the moment my neuropsychiatric symptoms are very...

Hi guys. Just wondering if anyone had been diagnosed with psoriatic arthritis? I've been told I have arthritis (via a private MRI a few years back) but my GP...

I have been SI EOD for three months now. Plus all cofactors. I have had the odd good day, but I have just reduced my injections to every two days in between...

I have read lots of posts about reversing out, but just wanted to have a moan. I seem to have a different symptom each couple of days, and always worse than I...

Due to my ongoing failing health I've had to do my own research as to the pathway of blood test results, symptoms and the progression/knock on effects of...

I know the whole subject of alcohol whilst on B12 injections has probably been debated to death but is it really that bad? Can it actually do any real harm to...

So I was doing ok over a month ago. Not perfect but ok. Everything has really gone to S**t! So as part of my symptoms I was dealing with frequent urination...

Hi all, I am meant to take one 5mg tablet of folic acid with each injection, that's every 2/3 days. These were keeping my levels high but the tablets give me...