Devasted

[Popcorn12345]

I've had about 10 injections now and things are getting worse. My pain is worse and spreading and no pain killers touch it. Is this really normal for reversing out? It's all in my glutes hips and legs.

Is this normal?

[wedgewood]

It doesn’t happen to everyone, but it’s quite common . Sometimes when the healing starts and the nerves awaken , it can cause pain . Yes , someone did coined that phrase for it ,— “reversing out” . So try not to get distressed , and persist with the injections . It didn’t happen to me , but I hope that someone to whom it did happen will answer you and put your mind to rest . . Best wishes .

[Jillymo]

Hi Popcorn12345,

It is common, others have experienced it, myself included. Is it burning stinging sensations, sharp stabbing pains and numbness ? I havn't found painkillers help either, but did find the pain not so intense as time went on. How often are you injecting ?

10 injections is nowhere near enough, are you able to increase them ? I know how awful it is but try and stick with it. I dont know what to advise and still looking for a solution to help myself with similar issues. I do find I get odd days where the discomfort is less but there is no rhyme or reason why.

I feel your issue is what we discussed and wonder if it might be worth you seeing a urologist.

PM me if you wish.

[Nackapan]

I had alot of pain in my hips and legs. Had so many pillows in bed as it woke me up all of the time.

My worst pains were headaches and migraines though .

It does improve .

Very early days for you .

I still ache if a B12 injection due / needed .

[Popcorn12345]

Dr Klien has me doing injections twice a week. And to support that take 400 of folic acid. Is that enough folate for twice a week injections?

[Myoldcat]

Wondering what time period your 10 injections have spanned? My experience was of feeling slightly better after the 6 loading doses over 2 weeks (twitching, cramping, and back pain much reduced) but then being overwhelmed by a changing range of symptoms as I continued with injections every 2/3 days in the following months, presumably as nerves have begun to heal. Severe migraine; intense shooting pain in lower legs: back, groin and hip pain as you describe. It was definitely a case of taking one day at a time, and I have had some very low days. The first 3/4 months were the most challenging - now I'm 9 months in and much of the worst pain has calmed. Still on the same injection regime as I know there is still a lot of healing to happen. Also had a blip with folic acid last month so feel the B12 has been less well used and some twitches have returned. So in summary, healing is a slow process, as it took us along time to become this deficient. Some people don't notice any 'reversing out' symptoms, but apparently 1 in 10 does. It's hard, but if you have PA or any other form of B12 malabsorption you have to weather this storm, keep up the injections and get through to the other side. It will happen, wishing you improvement very soon.

[Popcorn12345 in reply to Myoldcat]

I'm on twice a week injections as told by Dr klien and on 400 folic acid acid a day. Also taking vit d k2 and magnesium for d deficiency.

Taking iron for low iron.

Still not sure where my problems are coming from.

A CT scan showed an abnormal looking pancreas. Don't know why yet. Waiting for a specialist.

But I feel like I'm just getting worse and worse. Not making any progress at all.

[Ghound]

Hi Popcorn, I'm sorry to hear you're feeling so unwell.

However, as far as B12 deficiency, please be assured, as others have said, that ten injections are a drop in the ocean!

I didn't feel even halfway better until I'd been having injections for six months, and I continued to improve for at least a year .

Im fortunate that self injecting once a week has enabled me to live an almost normal life.

Don't lose heart, and sending you best wishes for a speedier recovery xx

[Popcorn12345 in reply to Ghound]

Thank you. It just feels like all the symptoms I was having have ramped up x10 since starting the injections. I had hoped it would be the other way around

[Myoldcat]

It will settle, kerp going!

[JesusMercy60]

Hello Popcorn,

I wish I could make it go away for you and everyone on here, I'm on ending of 3 months of injections eod and it's better that at first but I do notice like My old Cat said new symptoms have evolved over this 3 months and the others are not as intense and some other symptoms have gone. I don't know if your mind has been going through changes in the brain but I have like a racy feeling in my mind that comes and goes now on injection day and like I'm over electrified in my body, and the tingling and nerves going kinda crazy at times but the pain has gone way down for now. I'll still get a shooting pain off and on even when I take my multi through out the day my head and nerves still are firing off. so I'm sure this is all your nerves waking up and healing and I'm learning as well it is true but I'm still early as well. I try to go by everyones time frames. the mental part of this is hard at times too. I'm not sure if you have those symptoms of the mind like anxiety or fear. but the pain has changed to tingles itching for the most part. I don't know if you live alone but it's also hard to explain this to others they hear me but they just can't understand. oh and my stomach is ususally messed up lately I don't know if you have gastric issues. how long were you deficient?

[EiCa]

Early days and reversing out are all possibilities. That said, I think it is errant thinking to ascribe all symptoms to B12 deficiency, and that it is prudent to get yourself checked out. I have hip, spine and glute problems that are functionally caused by collapsed vertebrae and other organic problems. (osteoporisis, arthritis) If you have already had x-rays etc. and had other causes have been elliminated, then I think you can conclude that you need to try to endure the pain until the relief from the shots kick in.

[Popcorn12345]

I have had 5 mris all of which have shown nothing. I'm being hit with the most brutal fatigue and light headedness and nausea.

I'm concerned that maybe my iron is to low to support the injections