Back to trace blood in urine again! I... - Pernicious Anaemi...

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Back to trace blood in urine again! I am at my lowest ebb yet.

Gobbozoid profile image
8 Replies

So I was doing ok over a month ago. Not perfect but ok. Everything has really gone to S**t!

So as part of my symptoms I was dealing with frequent urination bladder pain, with trace blood. That had all begun to settle down. I was sleeping through the night again. The blood in dipstick tests was tiny amount taking ages to show up. I kept injecting then life went wrong.

My best friend a Chocolate labrador named Charlie started to really struggle with his mobility. His health declined. I and my partner didn’t leave his side, for about a month. In the end he couldn’t move and it absolutely broke me. He was put to sleep.

Then two days later we both got Covid. I was so bad I was put on antivirals again. I kept injecting throughout.

Then Rosie my miniature dachshund started screaming whilst on a walk. She screamed when we went to pick her up. Suspected disc injury in her back. She was sent to a specialist hospital in Cambridge we had to drive over an hour there and then back again. The stress and sorrow on leaving her there by herself was awful made doubly worse by the loss of Charlie only a month before. She’s back home now but has to be confined to a crate for over a month and given a whole cocktail of meds and we have to hope she gets better or it will need an operation.

it cost £2.5 k to keep her in a couple of nights. If the operation is needed it can be anywhere from 6-10k. It’s horrible to see those you love suffering.

My partners also due in for an operation and I don’t know how we will cope. Then to compound it all. All night I had to keep peeing again out of the blue. So I dipstick tested for blood and it’s the highest a dipstick test could show.

this at the very least will mean a camera inserted down the penis again (had this 2 years ago) it’s hell on earth with no sedation or pain relief. Obviously I fear cancer but it’s unlikely as it wouldn’t or shouldn’t get better then worse then better etc. I was so sure it was purely b12 related cystitis. Maybe Covid, stress, etc have all exasperated things?

I am clutching at straws and not coping at all. I lost my best friend in the whole world and the grief wells up in me daily. My little doggy girl is seriously ill and god forbid it can lead to paralysis. My partners due in for surgery. And I am peeing blood, a wreck and having to inject every other day for a year….. I just can’t take anymore misery.

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Gobbozoid
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8 Replies
Thrones12 profile image
Thrones12

hi Gobbozoid. I’m so sorry to hear about this stuff happening to you it’s not easy to cope with any type of passing, be it human or pet it’s just as painful so my condolences to you both.

I’m just wondering if you’ve been scanned for kidney stones,I have another three in my left kidney and they don’t have cause a lot of blood when I have to pass one, they can really rip your uretha when passing through they can lodge there for a while too before passing it’s a real nightmare, myself and another family member actually make them but I can’t remember the name for that sorry.. I find one of the best things that works for me is putting a wee drop of lemon or lime juice in water and making sure I drink plenty of fluids,your gp can give you meds to help breakdown any stones but the system is not very upfront about the options available think they prefer to see us suffer. Anyway apologies if you’ve already been down that route just thought I’d mention it just in case..best of luck to your little doggy too ,big hug from me take care.

Gobbozoid profile image
Gobbozoid in reply to Thrones12

Sadly I had ultrasound etc and nothing. Next is the dreaded penis camera which I had 2 years ago. It just showed my bladder was raw last time. Dreading it again as it’s terrible.

Everything is getting on top of me. I keep really missing my old dog and getting upset over the way he died. Even seeing pics of him or reminders of him are absolutely gut wrenching. My other dog that’s injured is looking very sorry for herself and it’s rubbish seeing her confined.

I’ve had illnesses my whole life and after 45 years I feel like I am losing the will to fight. I was hoping this was more reversing out symptoms as cystitis is listed but worry about the trace blood

Wheat profile image
Wheat

Gobbozoid, I can relate to your situation. Of course you are grieving for Charlie. I recently lost my little beautiful girl cat to illness. It was traumatic and I miss her. The stress and upset has shown itself in physical illness, a lot.

I wonder if this prolonged stress , grief and anxiety and worry is showing up (again?) in your physical symptom of pain and blood in your urine.

I send all best wishes to you, your partner and Rosie. Hugs too, xx

Gobbozoid profile image
Gobbozoid in reply to Wheat

Thank u. We work with dogs and have dealt with hundreds if not thousands and Charlie was so bright and clever. He knew over 40 tricks that I taught him including how to drum. I know it sounds cliche n weird but we just instinctively got each other I could get him to do a new trick sometimes on the first try. He was and always will be the best friend I could have asked for and it crushed me having to hold his head up so he could even drink. It’s like a part of me died.

I used to say to him at the end that we’d meet up in the next life if there is one and go for really long walks in the forest just him and I, like we used too. How I feel at the moment he may not have to wait long. Being honest I miss him more than I thought possible. There’s a part of me that feels so fatalistic as it’s just been misery heaped on the back of misery.

I don’t know if I can be so stressed I can make me bleed I googled it and it says no.

God I miss my Charlie boy….

Wheat profile image
Wheat in reply to Gobbozoid

Your post said it all. I always had dogs until I was too ill, then cats. I would have given up my life for 1 minute, or even 1 second more with them, for them to live. It is heartbreakingly awful when you lose a soul mate.

Sometimes it's a case of just keeping going until better times come again.

Fish to Google. Just because it is unknown to them. I've had uti's from stress. Excessive rectal bleeding after learning of my brother's death.

X

charks profile image
charks

How sad. I have been through a similar thing with one of my cats. She had CKD and we spent a lot of time looking after her. I found her dead in front of the woodburner one morning and it was devastating.

My partner keeps getting blood in his urine so I know how worrying it can be. He has had the camera up his penis twice and he agrees with you - it was horrible. They can't find anything and put it down to a large prostate.

Those of us with B12D don't react well to stress and it can play havoc with our bodies. Mentally and physically. When I am stressed my blood sugar shoots up. I also have frequent urination but it gets much worse when I'm stressed. Apparently when the body is stressed, it releases hormones like cortisol and adrenaline, which can affect the bladder and urinary tract. These hormones can make the bladder more sensitive and irritable. Maybe this is causing the blood in your urine?

I found meditation helped. I initally rubbished it but, in the early days of finding out I had PA, I was very anxious so decided to try it. It actually lowered my blood sugar. Maybe you could try it.

Nackapan profile image
Nackapan

Im so sorry to hear of your dad's death and another poorly.

One of my cats I'd cared for since a tiny kitten from a rescue got poorly .

Been to the vet on the Friday.

Found hef dead under the sofa Saturday morning .

Devastating .

Thd Monday I collapsed then couldnt get up.

Stress and grief plays havoc with our health.

Hope Rosie trecovers okay.

She will be missing Charlie too.

soppysokes profile image
soppysokes

Absolutely extreme stress can and does cause urinary problems so with how you are describing things it wouldn't be so surprising!

situation here was UTi’s several times a year for 12 years.had every test going, scans, cytoscopies the lot-nothing found- till yet another bout ended up in hospital-am forever grateful that one doc there said, ‘this is crazy it needs to be sorted out properly’. It had only ever been treated everyt8me with varying antibiotics and then a low dose continual antibiotic.none cleared it up it always returned.The hospital doc decided IV Gentamycin just a few doses and bingo it was cleared up and,not returned in 5 years. It seems it was an infection embedded in the bladder but none of the scans etc had ever showed it up. it was just his gut feeling that it was embedded and he was correct. maybe something to think about if yours is ongoing for long.

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