'Its all in your head'!!!!: Saw this in... - Pernicious Anaemi...

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'Its all in your head'!!!!

annmarierodnes profile image
10 Replies

Saw this in The Conversation and it will ring true for so many of us:

theconversation.com/all-in-...?

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annmarierodnes profile image
annmarierodnes
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10 Replies
Nackapan profile image
Nackapan

Yes unfortunately. Thanks for posting this .

JHutton1994 profile image
JHutton1994

Yes, I have been seeing doctors for the same three symptoms for 2 years now. No closer to diagnosis now than I was then. I also get know nothing nurses making insinuations about my mental wellbeing and moral integrity. Some doctors too. Sometimes I question if I am just an insane attention seeker, but contrary to what the tabloids and government think there's no real benefit to prentending to be disabled.

topazrat profile image
topazrat

Oh how true that is! I no longer trust doctors and stay away from them if at all possible after being told 'its all in your head' for decades and even with test results showing I have autoimmune diseases now, they still try the 'go away and forget about it and you'll feel better' tack. Fortunately, I'm strong enough to give them what for when they do!

yorkshiregirl4 profile image
yorkshiregirl4

What a fabulous article you have found. I was never believed some thirty years ago and had to pay a large amount to get help from a private clinic to get myself vaguely "back on my feet" years later. I was never well enough to go back to work. My then GP did not believe a word I said and so I stopped going to him because it was so upsetting.

That mistrust of doctors has remained with me for all these years and I am now surprised when any doctor actually believes me. I am normally a pretty confident person but my continuing mistrust of doctors remains. Thanks for posting about this article.

helvella profile image
helvella

Stolen!

‘All in your head’: when doctors misdiagnose autoimmune disease as psychosomatic

healthunlocked.com/thyroidu...

That's the problem when you have something others consider valuable! :-)

annmarierodnes profile image
annmarierodnes

topazrat , JHutton1994 and yorkshiregirl44 , we're just the tip of the b12d iceberg! I was spent to our menopause clinic and when finally diagnosed with PA not treated properly (just 6 loading doses, then every 12 weeks). I have been left with nerve damage ( burning feet, tinnitus etc). Thank goodness for this wonderful supportive forum as I dread to think what state I would be in if I hadn't discovered it and information on SI which I do EOD but sometimes need once a day. My GP practice now refuse to give me any injections as per prescription because, the nurse said, 'if anything goes wrong we will get the blame'. The clinic now have my letter listing my symptoms and why I SI. I am tired of not being taken seriously and should ask to see my medical records to see what else is there in their notes! Take care of yourselves and stay strong and resilient.

yorkshiregirl4 profile image
yorkshiregirl4 in reply toannmarierodnes

Sorry to hear of the difficulties you have been experiencing. It is possibly because of my inability to trust doctors generally that I have never told my current GP that I inject daily. I could not even begin to guess what the reaction would be. I am keen to continue with the 8 weekly injections and have them written on my medical notes.

I know that many on this site believe in telling the GP about self injecting but having struggled to get even a partial loading dose regime and a real battle to get 12 weekly down to 8 weekly injections (even with a PA diagnosis with neurological symptoms) I acknowledge that I do not want another battle. When I commented upon my GP Practice not adhering to the guidelines for B12 loading doses the only response was, "Well, that is what we offer to all patients" and they would not listen at all. Take care too.

Oneash profile image
Oneash

I once got told an infected bottom cyst was "all in my head", but the guy in question actually meant sinusitis was the root cause! 🤣 Well actually B12 deficiency was the root cause of everything... but yes I'd already been called a hypochondriac by my GP , so I took it that way. I'd already had the indignity of a 1st year student, with fabulously sculpted false nails, poke about my backside.

Bedside manner is a performing art form 🎭

You've gorra laugh....

MoKayD profile image
MoKayD

Back in the 1970s my GYN told me that menstrual cramps weren't real, it was all in my head. I found a new GYN.

The doctor in emergency told me that my test results had come back “fine” (bare minimum tested) so he had come to the conclusion that my symptoms were therefore psychosomatic so “here’s a lorazepam so you can go sleep if off.”

Still infuriating a year later

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