Thank you for all your support

[Libuse]

I finally found the courage yesterday to self inject. It was so easy! I finally feel in control of my own life again not at the mercy of GPs with a limited understanding of B12 deficiency and financial constraints not of their own making.

I just want to say thank you for the tremendous support I have received on this site, in particular from the administrators who have saved so many of us from severe depression and physical incapacity.

If anyone else frightened of self-injecting, do message me and I will help if I can

[Hidden]

Well done!

Its like having been a prisoner for so long, the shackles are off and freedom awaits.

Enjoy !

[Nackapan]

Glad you are now feeling in control Still write yo your Gp requesting better treatment .

I was able yo fo thus more even self treating.

Now on medical notes and prescribed.

Hooe yiu getvthe benefits very soon.

How often do you need b12?

[Libuse in reply to Nackapan]

Well, I was prescribed every 3 months but have tingling in hands and feet, also ‘foggy’, so I am trying once a month. It’s not PA but dietary because I have to take all nutrition intravenously. Been ok and fully functioning for many years but even hospital dietician ignorant of the dangers of B12 deficiency because of bypassing stomach……… I was lucky GP picked it up but will only prescribe standard dose and gave diabetes test (negative). All my inside info has come from this site. I don’t fit your usual categories but am so grateful!

[Nackapan in reply to Libuse]

Very good you trying monthly . At the same time at least push fir 2 monthly ftom your doctor by letter. Hoping monthly makes the difference

[wedgewood]

Congratulations Libuse! Yes , the first injection is really terrifying for most people . But what an amazing difference it makes to our lives . But under treating B12 deficiency /Pernicious Anaemia costs the NHS huge sums because it leads to many other health problems . Why don’t doctors believe us when we tell them that our symptoms start returning when we are under treated ? Treating us like Hypochondriacs is a nasty cheap method of dealing with us .

No interest is shown in finding out more about P.A. There is no connection to “Big Pharma “ who hold such great influence with doctors . But

[Hidden in reply to wedgewood]

So true wedgewood

[mickeymouse42 in reply to wedgewood]

The cost of treating PA is mainly the cost of paying nurses in GP practices to do the injections. If patients were allowed to self inject prescribed ampoules or could get B12 ampoules from pharmacies without prescription or (even better) got free prescribed ampoules, progress would be made.

Carolyn Harris, the MP for Swansea East, recently got a bill through Parliament making HRT prescriptions free. People with Thyroid disease typically get levothyroxine free (it might depend on where you live).

Maybe the PA Society could enlist the support of Carolyn Harris?

[Narwhal10]

Congratulations. Wishing you well

[Readdaily]

I’m so happy for you. The road to recovery is so wonderful to travel, especially when you’re traveling with one’s who know what it’s like to walk in your shoes. I wish you all the best on your journey to health.

[ClareP5]

Well done - welcome to better health - it’s nerve wracking, but it gets easier over time - and you will hopefully feel the benefits quite quickly.

[Libuse]

You helped a lot, beginner1. Thank you 😀😀😀 Xxx