B12: Hi ‘I’ve been taken off my b1... - Pernicious Anaemi...

Pernicious Anaemia Society

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B12

78user profile image
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Hi ‘I’ve been taken off my b12 injections which I’ve been on for 12 years ! They said I don’t need them as the range is 187 and mines 197 my memory is being effected I’m waking up with severe pins and needles in my left arm and feet. I’m so tired all the time and cold. I’m getting timing sounds in my ear. I feel like a hypochondriac!! And as I’m 49 is it peri menopausal symptoms? I have asked to pay private and they said they don’t do it. I feel I’m being pushed away because they said my levels ok!! I have had blood tests and they said my ferritin and folate are slightly low. And take some tablets from over the counter.its very unusual for me to do this but I’m not being heard x

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fbirder profile image
fbirder

If you’re a member of the PAS then give them a ring. If you’re not a member then join and give them a ring. They’re used to this stupidity and can give you the best advice and intervene on your behalf.

pernicious-anaemia-society....

dianewilson1900 profile image
dianewilson1900

WRONG! Under 200 is considered grey area here in the US and you are so close to the cut off point. That is so wrong of them. Are you in the US? I ask brcause over here you have a right to seek the opinion of a second doctor. Don't worry about "offending" your current doctor. It's not about undermining his credibility. Your goal is to look out for your interests, get the best health care possible and you have a right to be concerned about getting sick again! Here in the US you can also switch providers of you are not satisfied with your doctor. I don't know if you can do this in the UK. What are the rules regarding this? They are WRONG for yanking younoff injections, especially since what counts is NOT B 12 serum levels, but how well your body is UTILIZING it! Print out some articles on MMA and Homocysteine testing. Demand they test your for that. How do they know how well your body is UTILIZING B 12 at the tissue and cellular level? Go ask them that. I bet they won't be able to answer that...then they will feel foolish as heck!

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