Supplies from Germany have arrived.

[Cali25]

Hi everyone, I now have my supply of ampoules and needles as I'm sick of trying to explain to my numpty GP that every 8 weeks is not enough. It is 4 weeks since I had the last shot at the surgery and I'm feeling rubbish again most of the symptoms have come back, terrible burning in my feet and legs, pins and needles in my hands, arms and face, at least the brain fog isn't back yet. I'm doing sub q and did my first one today, it took me over an hour to have the courage to do it!!! The needle looked enormous even though it was only 1/2 inch lol anyway I made it and I'm ok with it 😀😀. So I'm just going to follow the guidance the GP is incapable of and have my 8 weekly shot at the surgery.

I'm also taking 400iu folic acid 5000iu Vit D and 200mg Magnesium chelated along side 210mg ferrous fumarate X 3 a day. Is there anything else I need to take to support the B12? Many thanks as always for your support. Cali

[wedgewood]

I must congratulate you Cali25. Excellent news ! You are doing everything right .

[deniseinmilden]

Congratulations on now being able to get your life back!

You are likely to benefit from a diet rich in potassium and suggest that you Google it to find out sources that you may like.

I find a broad spectrum multivitamin and mineral supplement is a good starting point as it can supply the things you need in a balanced way.

Good luck!

[Hidden]

Well done, it's nerve wracking doing the first but by injection 3 or 4 you'll take it all your stride. Your symptoms will go and you'll feel so much better.

I found after a few months I could do the injection into my leg muscle.

I'd also recommend potassium, I started taking a supplement and think it's been a real benefit.

[Cali25]

Thanks for all your comments, really appreciate your support. Will look into the potassium & multi vits/ min.

[Hidden]

I found having my own supply from Germany gave me a feeling of ownership of this condition Cali25. I was having those horrible burning sensations in my feet, electric shocks in hands a feet, sore mouth and altered taste after just a few weeks. At the start of my accelerated scheme I was injecting every 2 weeks but soon recognised I was really needing a weekly schedule. After a couple of months of that I find I can stretch this to about 10 days but if I leave it longer then it takes a day or so for the injection to fully take effect. I am going to make it weekly for a while then see if I can stretch it out as nerves are repaired.

I was summoned for a Health check by the surgery a couple of weeks ago which includes a sample for a Full Blood Count. 2 practice nurses had a total of 4 goes at tapping into my system, leaving some livid bruises before passing me over to the Phlebotomist a week later. Results disclosure is on 24th November so that is going to be interesting. The GP I am seeing knows what I am doing and although he now understands why reluctantly was not able to support me with the B12 - I like you got mine from Germany, but by a personal courier who brought me 100.

It would be good to be able to openly discuss things with the GP but I can't see it happening anytime soon, they are constrained by licensing and guidelines as well as senior partner directives. I am not sure if I am looking forward to the 24th but will make sure I am loaded for bear and if there is any nonsense then they will get both barrels.