B12 ?'s: By b12 serum was 393...Dr's... - Pernicious Anaemi...

Pernicious Anaemia Society

32,672 members24,065 posts

B12 ?'s

Izm909 profile image
8 Replies

By b12 serum was 393...Dr's did not want to test my b12...had neurological symptoms...neuropathy of entire left arm and hand...weakness and loss of balance in legs....been supplementing with methylcobalamin sublinguals 5000 mcg and had 5 b12 injections...tingling in neck and shoulders has subsided....strength is slowly returning.... haven't been able to find much info about recovery experiences....does anyone have any info on how long and what the experience is like ??

Written by
Izm909 profile image
Izm909
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Gambit62 profile image
Gambit62Administrator

suggest that you browse through other posts - there really isn't a standard answer to your question - some notice symptoms improve quickly - others don't notice anything for months - lt find that symptoms return well before maintenance shots are due.

Izm909 profile image
Izm909 in reply toGambit62

Is common to feel previously afflicted areas have sensations ? Us that sign if healing ???

Gambit62 profile image
Gambit62Administrator in reply toIzm909

is common for aches and pains to seem to get worse before they get better - some people also find that immune system goes into overdrive and colds really start to express themselves in runny noses - rashes are also quite a common side effect (though doesn't always subside.

As I say - look through other peoples posts - its quite regular for someone to ask about what goes on in initial stages.

would be good to identify all symptoms and monitor what happens with them as time goes on - as B12 deficiency from an absorption problem can take years and even decades to manifest as a full blown deficiency worth also noting things that may have been around for years.

pernicious-anaemia-society....

Izm909 profile image
Izm909

I have one more question?...I read that there had been studies done where ultra doses of methyl b12 encouraged nerve regeneration...it was stated that the dosage used is in accordance to individual weight at 500 mcg/kg ...I took an ultra dose of 30000 mcg of sublingual methyl....my feet and areas that had been afflicted started to tingle and are still tingling...not sure if this should be cause for alarm any info is very much appreciated 🙏🏾

Izm909 profile image
Izm909 in reply toIzm909

If anyone has any insight it would be awesomeness

fbirder profile image
fbirder in reply toIzm909

Not sure how that would work as anything above a certain level in the blood is, straight away, eliminated in the urine.

Izm909 profile image
Izm909

I'm not sure but I don't think it's being excreted in my urine even with the ultra dosing...urine is clear with a faint yellow color...idk I'm just going to continue and hopefully I'll come out ok on the other side

Izm909 profile image
Izm909 in reply toIzm909

I've been getting shots and loading with vegan safe b 12...since I've been having new problems with my vision it's spotty and blurry I'm not sure if this is a healing response or some new problems...anyone who's has any info would be greatly appreciated 🙏🏾

Not what you're looking for?

You may also like...

B12 Patches

The forum has been a true blessing! More information than my GP! My question: Has anyone tried...
RisingOne profile image

B12/ PA

Hi. Could someone please tell me the difference between B12 deficiency and PA. IVE HAD THE LOADING...
debbie177 profile image

B12 - autism

Just reading some info that being b12 deficient causes autistim? Or cdd is caused by b12...

B12 injections

Hi. Having just had another run in with my GP surgery who now want to drop B12 injection to every 3...

Active b12 vs total b12

I had some vitamins and minerals tested, and my active b12 came back as 46.6 pmol/l with range of...
happyp profile image

Moderation team

See all
Gambit62 profile image
Gambit62Administrator
Foggyme profile image
FoggymeAdministrator
taka profile image
takaAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.