I have just been to see the Haematologist today re: iron-avidity/Haemochromatosis and PA. I am in a situation with my Haemo that the recommended treatment would be a venesection to reduce the transferrin saturation but I led the consultant away from that to concentrate on the B12 and PA, and had valid points to argue when he stated one thing or another. He handed me a handwritten letter to my GP requesting a trial course of B12 injections at 1 per week. I am so happy... it's a start. I have already requested the GP to sign the prescription and I am hoping to have the injection at 5pm today. How's that for being armed with the correct information and being assertive? I thank you all for the wealth of information shared to enable me to get to this point.
Questions now will relate to what cofactors are needed and any advice so that this trial becomes part of my ongoing treatment. He has ordered a few blood tests in 6 weeks for the following: chem profile, direct antiglobulin test, ferritin, FBC, Iron profile.
Any suggestions most welcome as I am trying to learn as much as I can to keep 10 steps ahead... I'm not going to just be dismissed when I feel this bad.