Hi everyone, I'm posting for first time.
My son (22yrs old) is autistic, with dysmyelination (abnormal/lack of myelin). He has had high serum b12 levels (ranging between 1116ng/L to >1500 ng/L) since 2007. Liver enzymes have always been high (in particular Alkaline Phosphatase and GGT. RBC, Haemoglobin and Haematocrit .
He is not on any vitamin b12 supplements and his diet is restricted. He takes high doses of vitamin b6 in the form of pyridoxal-5-phosphate to control seizures.
I am worried that the B12 is this high, despite no supplements and in light of his myelin situation (which i understand is connected to vitamin b12) what could be going on? He has been anaemic for a number of years despite iron supplements. He has always been very lethargic prior to the anaemia and since he was born.
Is anyone able to shed any light, ideas on what any of this means please?