I was diagnosed with Pernicious Anemia 8 months ago, my levels were very low (80), showing neurological symptoms. I had the loading dose i.e. 3 injections per week for 2 weeks, it made no difference to my condition, so after a long battle with my GP and reading all the helpful comments on this Forum, I managed to persuade him (after quoting NICE and BNF guidelines) into letting me self inject every other day (until symptoms stop improving). I have seen a Neurologist who confirms that I should carry on with the B12 injections until symptoms stop improving.
However, I have just received a copy of a letter sent to my GP by my Gastroenterologist saying that my B12 injections have been adequately replaced with oral B12 supplements once per week and that my B12 should be monitored once per year?!
I will be calling the Gastro's office tomorrow to point out this error and I hope he will amend the letter as, unfortunately, my GP is very anxious to get me off the B12 injections.
Before I start drafting a letter of complaint has anyone on this Forum ever heard of someone having Oral B12 supplements once a week and only being reviewed annually? Wouldn't a Gastro. know that if you have PA you cannot absorb oral supplements?
Many thanks for your advice.