Hello. This is my first post, although I have been a lurker for some time. I am 65, female, with many symptoms which brought me to this forum.
I thought I was B12 deficient about a year ago after finding information by accident which appeared to sum me up completely. So, I started taking B12, but nothing improved. I told my GP (who has never treated me successfully for any of my existing complaints over the years) and she was very sceptical but sent me for a full blood test. I told her about the vitamins I was taking... bog standard Cyanocobalamin, but she said that wouldn`t make any difference to the result. First mistake. So, the blood test came back 809 ng/l for serum B12... but only 4.7 ng/l for folate. She advised me to take Folic Acid. I upped my green veg, because I didn`t want to skew any more tests. Was that wrong? I am still not clear about the interaction between the two vitamins. I do already eat a good varied diet and feel I ought not to be deficient in either of these, unless I cannot absorb them for some reason.
Because I was complaining of digestive /elimination problems, and she will *only listen to two symptoms in a ten minute slot* , I got to see a Colorectal Consultant (on the Cancer Pathway) who promptly sent me for 3 tests. Fast forward 4 months, I have a diagnosis of, but no After Consultation for..
Gall stones... from the Ultra Sound.
Normal... from the Barium Enema.
Gastritis ... from the Gastroscopy.
These results, I just found out, my GP has been sitting on, marked "no action required" and didn`t bother to tell me...
I wanted some better (different) blood tests done, but my GP was not keen to advise me and said they were a) not available on NHS, & b) nothing from the Internet was valid and she wouldn`t look at results *if they involved a finger prick test*. Fair enough. I said I would try and get "proper ones" done privately somehow. She had no idea how I could do this, but I am quite resourceful and devious if pushed.
So I have, in spite of two GPs best efforts, managed to get some bloods booked for Monday. Full Blood Count (again), Methylmalonic Acid, Holotranscobalamin, Intrinsic Factor Antibody, and Homocysteine. Surprisingly these can be done via my local NHS hospital, but privately. It`s a well kept secret from the public. Why didn`t they know? If they knew, why didn`t they tell me? It`s quite easy to imagine a conspiracy.
I watched my poor Mother go downhill 10+ years ago with no medical intervention that was helpful. I`m pretty sure she was diagnosed with Anaemia (at least at some point) because she was told to eat raw liver when I was a child and she had severe pre-eclampsia when pregnant with me. Now I feel I`m heading in the same direction and I don`t want to be the burden she felt she was. Housebound, lame, doubly incontinent, doo-lally etc.etc.
Of course I might be totally wrong and not have a B12 deficiency or PA, sub-clinical or otherwise, but I am willing to try and get some proof one way or another...put my money where my mouth is, in other words. I also bought both the recommended Books , although I have not understood more than 30% of the information in them , I am at least trying to get to the bottom of my problems. I offered to lend them to the doc but unsurprisingly not interested. Oh, I could give you some juicy quotes. Maybe another time.
Have I done the right thing? What else could I have done? Will I alienate my doctors completely? Do I care?
I`m going to leave this now, and look forward to any comments that may be forthcoming.