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Pernicious Anaemia Society

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Information about Pernicious Anaemia and B12 deficiency from the Pernicious Anaemia Society

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What is Pernicious Anaemia? pernicious-anaemia-society....

What’s the Difference between Vitamin B12 Deficiency and Pernicious Anaemia? pernicious-anaemia-society....

Symptoms: pernicious-anaemia-society....

Diagnosis: pernicious-anaemia-society....

Treatment: pernicious-anaemia-society....

FAQ: pernicious-anaemia-society....

Pernicious Anaemia Society Library: pernicious-anaemia-society....

BSH Guidelines : pernicious-anaemia-society....

folate disorders

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11 Replies

Great easy to see read-out.. Thanks 😃

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PAS-adminAdministrator in reply to scorpiojo

Welcome :) Loads more to read on the first two sites of course, just thought I'd give a sample.

Wow! I'd not seen that final document on how pills, lozenges, etc., aren't a replacement for parenteral administration. Plus the bit -

The stories about problems with methylation are also heavily exaggerated by tablet sellers

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PAS-adminAdministrator in reply to fbirder

It's from the Dutch B12 research institute (and soon also treatment center, 1st of it's kind) The founders are coming to the conference in December. They have some other interesting articles, but no translation..yet.

fbirder profile image
fbirder in reply to PAS-admin

Cool. Roll on December!

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PAS-adminAdministrator in reply to fbirder

Agree :)

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scorpiojo in reply to fbirder

I can't believe you are going without me lol... Seriously let's hope we can have a summer one! We could probably all do with the Vit D :p

Thanks for this super explanation! I am being tested for this following blood results taken after diagnosis of carpal tunnel syndrome that showed low B12 at 176.........will follow this until it is ruled out. Have to phone for results in a fortnight.

helvella profile image
helvella in reply to lovesradio

Just to note that carpal tunnel syndrome seems occur more often in those with thyroid issues - possibly worth checking out that direction as well as B12. (And thyroid and B12 issues go hand in hand all too often.)

Thanks, first round of blood tests ruled out thyroid and rheuamatoid arthritis (thankfully) but found B12 deficiency, probably easiest out of the three to deal with!

Marz profile image
Marz in reply to lovesradio

Don't think helvella would have seen your reply as you had not clicked Reply on his post to to you :-) I know we all do it at times !

helvella is one of the Admins on Thyroid UK forum and has a wealth of knowledge. I too have been on the forum for many years. I think we both would say - what actually was tested to rule out a thyroid problem ? Sadly just the TSH is routinely tested and if you are in range - GP's declare there is not a problem.

Sadly that is only part of the story - the Thyroid produces T4 and this must convert into the Active hormone T3. This is needed in every cell of your body - so when low things begin to go wrong. T4 is a storage hormone and does not convert into T3 well if the B12 - Folate - Ferritin - VitD are low in their respective ranges.

So the TSH - FT4 and FT3 should be tested - along with the Thyroid Anti-bodies TPO and Tg - to rule out Hashimotos. One can have an in range TSH and FT4 - but a very LOW FT3 - due to conversion issue. Also many people do not have anti-bodies checked - so do not find out they have an Auto-immune condition. It makes for some very sad stories on Thyroid UK. the problem seems to be very similar to the problems experienced on the PAS Forum - lack of FULL knowledge at GP level.

There are Private Tests available in the home through Blue Horizon - Profile 11 is the most popular as it covers the FULL Thyroid Profile plus the vitamins and minerals mentioned above.

Always good to rule out the thyroid with the correct testing at least - as it can be responsible for so much in the body :-)

I am not a Medic - I have Hashimotos and a B12 issue. After a lifetime of illnesses/surgeries I was diagnosed with Hashimotos at 59 some 12 years ago ! My health has improved hugely once correctly and optimally treated.

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