I am writing to just say firstly how useful I find this forum - a lot of people on here are very knowledgeable and knowing that I am not going through this on my own helps me a lot.
I was diagnosed in July with PA and had previously been told my blood showed parietal antibody cells. My B12 levels then was 176 and folic acid 1.1. I was given 5 loading shots over 2 weeks and then told every 3 months together with 5mg folic acid daily.
Initially after loading shot 3 I felt fantastic, however this only lasted about 6 weeks. I posted on here and was recommended to go back to gp, which I did to be told by a different dr that I didn't have PA as I wasn't anaemic and they couldn't give more injections without repeat bloods.
I left the surgery feeling very confused and upset as I felt she didn't understand how I awful I was feeling at all. Anyhow roll forward a few weeks and I had my repeat bloods and yesterday went back to see my original gp. He tells me my folic acid is now over 20 so he was pleased with that, my calcium is 2.2 (he said this is low) and b12 300 - he was expecting this to be much higher as I have had loading shots and he said this should be in the thousands. I explained how awful I have been feeling, the tiredness, headaches, confusion, memory, upset tummy, etc and he said I now need another b12 shot today followed my monthly shots for 6 months and then another blood test.
On one hand I am pleased that he is listening to me and understands how important b12 is and seems to want to help - on the other hand I am wondering if I should be referred to a blood specialist.
Any advice would be appreciated.