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Pernicious Anaemia Society

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Large Red Blood Cells Detected.

WIZARD6787 profile image
6 Replies

Someone who I love very much just told me that they had a blood test and it showed enlarged red blood cells. They were told it was not a problem. Fact is it is macrocytosis and is anemia.

They are going to start self treatment following theb12society.com/treatment which I found posted in this community. Thank you so much!

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WIZARD6787
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6 Replies
Sleepybunny profile image
Sleepybunny

Hi,

B12 deficiency and folate deficiency are not the only causes of macrocytosis.

Does your friend have symptoms that are consistent with B12 deficiency and/or folate deficiency?

Hopefully the doctor will consider all possible causes of the macrocytosis.

Macrocytosis

This UK link is aimed at patients

patient.info/allergies-bloo...

Macrocytosis

This UK link is aimed at health professionals

patient.info/doctor/macrocy...

I'm not medically trained.

WIZARD6787 profile image
WIZARD6787 in reply toSleepybunny

Thank you for your reply it was very helpful and is appreciated. I will pass that information along.

My friend is only 35 years old and does not wish to wait until their B12 deficiency progresses to the point where it qualifies for medical understanding other than following the protocol as outlined by the B12 Society.

Their B12 levels indicate B12 deficiency although the practitioner is willfully ignorant and dismissed the possibility due to age even in the face of the test results.

They do have symptoms of B12 deficiency and there is a strong heredity component. The others in her bloodline were not diagnosed until late in life although suffering from symptoms well before that, which were ignored.

My friend has decided there will be no medical advice/interference from practitioners in regards to their B12 deficiency. They have decided that the energy spent trying to find a competent practitioner with little hope of success would be better spent in healing. And that the angst of a most likely failed search contrary to their goal of healing.

We both agree that attempting to educate a practitioner is unlikely as they are trained and there is no benefit to them to be further trained. and are in most cases not open to training by a patient.

KEFNB profile image
KEFNB in reply toWIZARD6787

I fully understand your friends predicament. I would offer one note of caution though and that is to check a folate level or at least do as I did and begin taking 400mcgs of methyl folate daily. My understanding is that if folate is low it should be normalized prior to treating B12

WIZARD6787 profile image
WIZARD6787 in reply toKEFNB

Thank you for your reply. I did happened to be aware of that. It is also in the B12 Societies recommendation.

Showgem profile image
Showgem in reply toKEFNB

You are correct in saying that a low folate level should be treated but it’s the other way around, treatment for b12 deficiency should always be started first.

WIZARD6787 profile image
WIZARD6787 in reply toShowgem

Thank you!

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