Hi all I posted yesterday that I am finally getting somewhere with my doctors & that they have agreed to B12 injections (once per week). I know this is not enough but I have plenty to self inject.
I have now had these symptoms for 3 months (started with burning feet/random pins and needles). It was about 5 weeks before I started B12 treatment, but only had 10 doses then GP stopped it. However, I went on to methylcobalamin every other day (as per instructed). Had a rough week with severe headaches/numb face. Started to wonder if I could be sensitive to this. Began to feel better last week, but since Sunday have had really week legs. Back on hydroxocobalamin (first injection on Wednesday).
Yesterday, I began to feel awful. My legs are so weak (up to mid thigh) and my feet are burning again. They are also painful, with some numbness. I woke at 3am and have not been able to sleep. It is nerve pain which I have been taking amitriptyline (10mg) for, but this is not touched it. I don't want to double it up as I have 2 kids to look after.
Painkillers are doing nothing.
When I first started injections, I was out walking daily for 20 minutes after about a week. I can hardly walk 2 steps at the moment.
I am going to ring my doc who supplied the methylcobalamin tonight.
Perhaps I just need to inject daily or at a higher dose?
I have started back on ferrous fumerate as my ferritin was low. My stomach is quite upset.
Please help, I am so scared. If these injections don't work, my GP will say there's nothing wrong or I have some weird neurological illness.
I need my life back...