Hi I've been on methylcobalamin over 2 weeks (had 10 hydroxocobalamin doses before that but my GP stopped them as he thinks I'm crazy!). First week of methylcobalamin was hell, severe headaches and numbness on my face, vision problems, weakness in my legs. Started to feel better 4 or 5 days ago and feeling awful today. I have a headache (frontal) and numbness in my face. My legs are really weak. This is very distressing.
All this in between fighting with my GP who is prepared to risk my health and let me deteriorate despite my pleading.
I have had a letter from a haematologist who agrees with me 100% and has said I should be treated "long term" with B12 and my GP has not responded. I haven't even seen the haematologist and he has advised this. I am going to see my GP on Wednesday and dreading it. He has treated me abysmally and has no idea how ill I am.
I am concerned that I have had these symptoms for 3 months now and I was getting better but delays in treatment have meant that I could possibly not recovery fully due to incompetent doctors. The leg weakness is a real worry - I want to get back dancing and cycling but I can hardly walk up the stairs, never mind anything else.
I want to get back to work and start living again. I know this may take months of treatment but my GP does not get this. Today, I feel "weird" and exhausted. It is so scary.