Hello, I am hoping for some advice please before GP app next week. I have posted before. Lots of severe neurological symptoms. I have been on at least 2 B12 injections weekly for past year.Diagnosed June 2016 b12 166 ng/L. I have been feeling recently that I am deteriorating. The sensations in my feet and ankles are getting worse. The burning or ice cold symptoms are constant. The soles of my feet are changing texture and look like leather. My toes and heals feel like they are stuffed with cotton wool and my toes most of the time will not bend as they feel full. My ankles lock in the evening when I sit down and I feel I am walking with broken ankles. I am taking magnesium for spasms. I have cut out all gluten as this appeared to cause spasms, and sugar seemed to aggravate the nerves. Also I think maybe my thyroid could be contributing to my symptoms. I had tests done some months ago and again a few weeks ago. I was reluctant to go back to my GP as she thinks nerve damage means antidepressants. My thyroid tests were similar 10 months ago and GP would not hear of me being treated. A locum has started in the practice and I am hoping maybe will have more insight. My thyroid test a few weeks ago was
Serum free T4 level 14.4pmol/L range (10.6 -23.2)
Serum THS level 3.67 mU/L range (0.3 -4.2).
Vitamin D 69
I take 400 mcg folate 3 times weekly.
I really don't know what else to do. Whether I should up the b12 to 3 injections again per week, but feel after this time I must be swimming in b12. My GP thinks I am on one B12 injection weekly which was prescribed by Consultant last October. Not sure how I should approach appointment. Just feel helpless. I appreciate any advice.