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Chronic Pancreatitis/Pancreatic insufficency

Paula1710 profile image
9 Replies

Hi I'm new to this forum I used to drink quite alot for 12 years not drank for over 2 years.

I have been under Gastro for over a year loads of tests 3 endoscopic,2 colonoscopies 3 US 2 abdo ct 1 mri

Fecal elastane test normal in April then 6 weeks ago test was done again 23 severe pancreatic insufficiency.

I had covid last November and from December iron low vit d.B12 deficiency diagnosed 2016. All other bloods and vitamins good.Had 11 stone intentional weightloss.After gallbladder removal stools yellow runny then last year went solid.Stool all over the place yellow then solid then runny.last endoscopy showed mild bilary gastritis put back on PPI.PERt mess made me vomit got a rash so was taken off them Tgey made me feel worse too.Got stomach pains,wind ,acid etc

Scans all normal last US stared pancreas grossly normal.Getting tested for bile acid malapsorbtion.I don't think they really know what's wrong with me chronic pancreatitis mentioned but then they said scans all normal they won't do an ERCP

Any support or advice would be welcomed quite scared really

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Paula1710
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9 Replies
Tisch2 profile image
Tisch2

They are correct with not pursuing an ERCP. That test carries a lot of risks. You obviously do not have chronic pancreatitis as it would definitely show on your EUS. Ask your gastroenterologist to test you for celiac disease.

Paula1710 profile image
Paula1710 in reply toTisch2

Celiac screen was negative had endoscopy mild bilary gastritis just put me on a PPI for 4 weeks and PERT which I've had to come off as made me very ill

Tisch2 profile image
Tisch2 in reply toPaula1710

You need an EUS then.

Paula1710 profile image
Paula1710

Sorry what is an EUS? What does it entail ?

Tisch2 profile image
Tisch2

A standard ultrasound does not have the capability to see the changes needed for CP. It can only show tumors or inflammation.

IH8EPI profile image
IH8EPI in reply toTisch2

or stones

Jesus5 profile image
Jesus5

Endoscopic ultrasound.

Joanhappy21 profile image
Joanhappy21

BIU@ 😊🎇

Paula1710 profile image
Paula1710 in reply toJoanhappy21

Sorry what does that mean?

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