Hi everyone Im in a dilemma again, I have had 8 nerve block injections in my back and it has given me a new lease of life, I can now move and breath and cope with what pain I am left with, although when it becomes unbearable I hit the pain meds again, but all in all feel fantastic.
I know that I should probably ring pip & enquire first but thought I would ask you guys first.
Do you think I would be still entitled to pip now my symptoms are manageable and i suffer (alot) less pain.
Thanks Any thoughts, as I just want to do the right thing
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Pollyannna
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Unfortunately I’ll never be cured but am sk frightened of going back to where i were, i think I’m trying to help with mind over matter, shutting the door on the pain and ALL that goes with it.
Don't do anything, because if anything changes or it starts not to work, you will have a huge problem re-doing it. Just carry on as you are, only really change (in my opinion) if you get worse. These conditions we deal with are so up and down and it doesn't make sense every time you feel ok for a few weeks to let them know. They will probably take it away ! And you don't want that!
That's how we all want, but you have to protect yourself as they (PIP, DWP) will not. Unless you know that you are on no meds, no pain, no appointments , even being discharged, don't pull any plugs yet. You don't want to stress yourself out trying to get this benefits back etc. Im glad you are feeling better and making progress- hope it keeps going. 🙏🏾🙏🏾
It sounds too early to tell if this is a long term solution! It’s great there are working, but you don’t know yet how long it will last or whether they will continue to work.
Hello Pollyanna, don't cancel pip you are not cured you have just found a good help to releive the pain of your illness . The illness is still there its only the symptom that is temporarly eased. There is a rule in DLA cases that allows you to still be classified as disabled if you had an illness in the past that could return i.e as in flare ups or mental illness not sure if that rule is there in the PIP regulations but worth investigating . Before making such a major decision about your pip claim. Make the best of your new sense of wellbeing , but do take care as pain often has a habit of coming back to bite you. Best Wishes
Thanks I will do some reading on pip regulations. I do feel like I’m winning the war on pain with these injections and my meds to back them up. It’s great. I wish I everyone else the best with their war x
Your welcome and I hope everyday that people will share their outcomes for pain as it helps others. Hope your releif continues for a long time to come. Let me know please what you discover about the pip regulations.
Hi i agree it is hard to get pip awarded but i feel that they are wrong in the way they assess ignoring medical evidence from both hospitals and gps and when they ask how you are, i cant help but say ‘im fine’ or I’ll be alright. I hate sympathy and I’m afraid that it I actually say out loud how I am, I’ll not manage mentally.
But also feel that just because they are so negatively unfair and wrong in their approach, I shouldn’t have to be.
I would definitely not contact PIP or stop it, you may feel good now but unfortunately these things don’t last forever. If you had been cured for good then that’s a totally different matter, but you know you haven’t, there is no telling how long the nerve blocks will work for. If you cancel and then reapply there is no guarantee you will get it again with the way things are tightening up. You are still having pain but managing it. Just carry on as you were. I hope the nerve blocks work for a while I know my son had them but didn’t last long, for him. Good luck
Hi there, I would not say anything and if the injections do wear off you are back to square one and remember it goes of your worst day and also what is your illness that effects your day to day activities , if you have a chronic illness you are going to get days better than others and other days a lot worse .
Personally I would stay on it for a longer time period.
You come of PIP and if you need to get back on they will get you to wait a further six month.
Do think about how long the injections will last. It is very difficult re-applying for PIP, once you have sad you don't need it...Perhaps speak to an advisor Citizens Advice or somewhere like that?
I’d hold off and see how long it lasts. I say this as you won’t be able to have them all the time. They are not let’s say just like popping a pill. A further reason you may have side effects later on.
So unless you want to start the whole process of getting Pip again. I’d wait and see.
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