Do I cancel my pip now or wait a while

[Pollyannna]

Hi everyone Im in a dilemma again, I have had 8 nerve block injections in my back and it has given me a new lease of life, I can now move and breath and cope with what pain I am left with, although when it becomes unbearable I hit the pain meds again, but all in all feel fantastic.

I know that I should probably ring pip & enquire first but thought I would ask you guys first.

Do you think I would be still entitled to pip now my symptoms are manageable and i suffer (alot) less pain.

Thanks Any thoughts, as I just want to do the right thing

[Bananas5]

Are you in receipt of PIP for just care or mobility as well? And how long is your award for?

It is not about what conditions you have but how you manage the daily tasks. Injections have helped for now but sadly they will wear off in time

x

[Pollyannna in reply to Bananas5]

I dont get the mobility portion however i did when i couldnt walk at all. I cant remember how long i was awarded it for, will have find the paperwork.

[Pollyannna in reply to Bananas5]

The thing is do I cancel pip until it wears off then re apply if the next ones dont work

[Bananas5 in reply to Pollyannna]

NO!!!

Even though you feel fantastic now you haven't beem cured.

x

[Pollyannna in reply to Bananas5]

Unfortunately Im not cured

I am just so good at the moment id like it last forever.

[Bananas5 in reply to Pollyannna]

Enjoy it and keep quiet

x

[Hidden in reply to Bananas5]

I agree!!!

[Queenielot in reply to Hidden]

I agree also

[Pollyannna in reply to Bananas5]

Unfortunately I’ll never be cured but am sk frightened of going back to where i were, i think I’m trying to help with mind over matter, shutting the door on the pain and ALL that goes with it.

[Pollyannna]

I will wait a while and see how i get on thanks x

[Hidden]

Do NOT tell PIP, nerve block isn't a cure, it's just a treatment.

[Hidden in reply to Hidden]

I agree! It's so hard getting PIP in the first place - don't do anything!

[Karm]

Don't do anything, because if anything changes or it starts not to work, you will have a huge problem re-doing it. Just carry on as you are, only really change (in my opinion) if you get worse. These conditions we deal with are so up and down and it doesn't make sense every time you feel ok for a few weeks to let them know. They will probably take it away ! And you don't want that!

[Pollyannna in reply to Karm]

I like being on the up and dont ever want to come down

X

[Karm in reply to Pollyannna]

That's how we all want, but you have to protect yourself as they (PIP, DWP) will not. Unless you know that you are on no meds, no pain, no appointments , even being discharged, don't pull any plugs yet. You don't want to stress yourself out trying to get this benefits back etc. Im glad you are feeling better and making progress- hope it keeps going. 🙏🏾🙏🏾

[Lulubee]

It sounds too early to tell if this is a long term solution! It’s great there are working, but you don’t know yet how long it will last or whether they will continue to work.

[Pollyannna in reply to Lulubee]

No thats true, but im working on my muscles whilst i can, I’m sure it will help me

[Lulubee in reply to Pollyannna]

I hope it does help, but I wouldn’t rethink pip until you have sustained improvement over a few months/year x

[Coralpink]

No. You would have to go through the whole assessment again when the injections wear off.

I have nerve block injections but they only last a couple of months.

Make the most of it. You are not cheating the benefit system, you still have the same problem, it’s just numb for a short while.

[Pollyannna in reply to Coralpink]

Do you know how many times you can have the injections, or how long pain clinic will keep you on their radar for.

I think i may have watched too much tv Lol

[katieoxo60]

Hello Pollyanna, don't cancel pip you are not cured you have just found a good help to releive the pain of your illness . The illness is still there its only the symptom that is temporarly eased. There is a rule in DLA cases that allows you to still be classified as disabled if you had an illness in the past that could return i.e as in flare ups or mental illness not sure if that rule is there in the PIP regulations but worth investigating . Before making such a major decision about your pip claim. Make the best of your new sense of wellbeing , but do take care as pain often has a habit of coming back to bite you. Best Wishes

[Pollyannna in reply to katieoxo60]

Thanks I will do some reading on pip regulations. I do feel like I’m winning the war on pain with these injections and my meds to back them up. It’s great. I wish I everyone else the best with their war x

[katieoxo60 in reply to Pollyannna]

Your welcome and I hope everyday that people will share their outcomes for pain as it helps others. Hope your releif continues for a long time to come. Let me know please what you discover about the pip regulations.

[Pollyannna]

Hi i agree it is hard to get pip awarded but i feel that they are wrong in the way they assess ignoring medical evidence from both hospitals and gps and when they ask how you are, i cant help but say ‘im fine’ or I’ll be alright. I hate sympathy and I’m afraid that it I actually say out loud how I am, I’ll not manage mentally.

But also feel that just because they are so negatively unfair and wrong in their approach, I shouldn’t have to be.

[jackie4ball]

I would definitely not contact PIP or stop it, you may feel good now but unfortunately these things don’t last forever. If you had been cured for good then that’s a totally different matter, but you know you haven’t, there is no telling how long the nerve blocks will work for. If you cancel and then reapply there is no guarantee you will get it again with the way things are tightening up. You are still having pain but managing it. Just carry on as you were. I hope the nerve blocks work for a while I know my son had them but didn’t last long, for him. Good luck

[Pollyannna in reply to jackie4ball]

Thank you Im expecting 6 months

[Hidden]

Hi there, I would not say anything and if the injections do wear off you are back to square one and remember it goes of your worst day and also what is your illness that effects your day to day activities , if you have a chronic illness you are going to get days better than others and other days a lot worse .

[Hidden]

Personally I would stay on it for a longer time period.

You come of PIP and if you need to get back on they will get you to wait a further six month.

BOB

[Pollyannna]

Well i will do some more research on what is the correct thing to do and let you know how i get on

[MSTKing]

Do think about how long the injections will last. It is very difficult re-applying for PIP, once you have sad you don't need it...Perhaps speak to an advisor Citizens Advice or somewhere like that?

[Billyboy2u]

I’d hold off and see how long it lasts. I say this as you won’t be able to have them all the time. They are not let’s say just like popping a pill. A further reason you may have side effects later on.

So unless you want to start the whole process of getting Pip again. I’d wait and see.