Follow up to pip off britain

[Davek723]

Hi again .not posted in a while been very ill.

I wrote pip off britain last year and its due an update. Ive been going through the pip debacle for abit now. I had assistance with the initial forms and have attended a face to face with a physio. At no point have i spoke to anyone who knows what my conditions are or even have a basic knowledge of what impact crps conversion disorder etc has on someones life. Its so frustating to try to explain all this to someone. Despite a diagnosis from a university hospital and a neuro scientist i feel i need to constantly prove things. This is the reason it has taken 8yrs to reapply. And nothing has changed.

Iam currently seeing a neurologist and on my first visit he sugested that crps could not spread through out the body. This of course is not true. So even some as educated as this have no real knowledge of crps. So its annoying to be assesed by a physio with no knowledge and their report being used to decide my fate. Trying to describe up and down cycles of pain muscle distortion is so difficult. I got a bit angry with the good day bad day statements from the physio. I stated i cant remember any good days. I suggest i have bad days worse days then unimaginable flair ups.

So im now 12 weeks from my initial form.

Still no response from pip other than we have your reports etc.

Its no wonder people get more ill when apying for pip. The whole process is so stressful and causes so much stress.

Stress being a trigger for many living with chronic pain you would think this would be at the forefront when applying.

Im thinking of creating a group to take this to task. Its my belief that all the stress of applying is and has made me ill. Or exacerbated my symptoms. So the assement is responsible for this .i find this unacceptable. I am fully expecting to be refused therefor more appeals etc.

I will follow up again on my response from pip.

Thanks again all.

Dave

[johnsmith]

I like you article. Have you met the ATOS replacement. First appointment I was given for PIP assessment was with 4 days notice of assessment. This did not allow anytime to arrange to get someone to go with me. Had to contact the DWP direct about the situation. It was slightly stressful worrying whether the DWP would accept my explanation or not.

The second apppoint gave me appropriate notice of examination. The examination was due for 1.30pm. At 11pm on the day of appointment I was told that the appointment was cancelled. I am now waiting for another appointment. When I get the new appointment I have to contact someone to go with me to the examination.

[Hidden in reply to johnsmith]

John that was my ESA appointment issue,my mum arrives from Glasgow to Irvine to goto Ayr they phoned as she pulls up in car outside as if by crystal ball cancelling second time I said ohno yous don't 1st time I got stuck with nurse that lied and my worker was with me meaning my 13yr old daughter!2nd time you cancelled, now you're trying the third time I don't think so,hold she puts me on whilst checks,See's that's correct says okay come in ,I said and I demand a Dr that knows my conditions not a male nurse that sees fit to lie from start to finish,I seen lovely psychologist which emailed head office about how I should never of been taken off it and he should be investigated.

[Hidden]

Thanks for the update,I understand what you mean,I'm going through appeals process at moment. Best of luck.

[Hidden]

Sounds like you've did great job on your form,best of luck

[Hidden]

Hi,it may interest you to know that either BBC or channel five are doing documentary on pip process in case you wanted to phone them and give them your details? My daughter is passing on mines to use on thier programme.

[jax53 in reply to Hidden]

Hi, Curly are they really, This Government has been the cause of Suicides because people who are disabled could not get their money, They have the blood on their hands.

[Sallyderek]

Hi did any of you watch a program around two years ago where a guy went undercover into the Atos office to work. Well he had a hidden camera on him and it showed people in the office telling him that they get £1000,s in bonuses to get people off of PIP. My brother inlaw had his taken from him and everyday he is thee minuits from death as he has such chronic heart condition, having died on a London Underground station but thank god there were two police officers and a doctor getting off the same train that day. They worked on him for 15 mins until help arrived. He had heart failure and was kept sedated in a London hospital for two months. He has had a triple by pass and two other heart related surgeries and has been told by a top surgeon that every single day he is only three mins from death............PIP removed his reward....they should be shot.

I wish all of you the best of luck with your applications 🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀🍀

[jax53 in reply to Sallyderek]

Hi, Sally yes they do, I agree with you, look up the 5 things Government don't want you to know about Disability, It was on the BBC1 website.

[painismysecondname in reply to jax53]

Hi, please can you send me the link/ webpage address for me to see the 5 things you mentioned

[Sallyderek in reply to jax53]

Thanks and I will ☺️

[jax53]

Hi, Dave, I know what you mean, Did you know that there are 5 things this government does not want us to know about the new Disability rules? Look it up, There is also A statement on DWP that If you have DLA for life you need not apply for PIP, Now I put that to them, and he said it does not matter you still have to apply, They are making it harder and harder, for us to function as a part of this world, I have applied, and have heard Nada, Go to S.C.A.R.T they will help you.

[painismysecondname]

I wish you good luck and success in the PIP torment.

I empathise with your having to explain your condition to the doctors; I am a trained nurse and midwife yet I'd never heard of neuropathy until I developed it. I found that the times when I've most not wanted to have to/ needed the added trouble of having to explain the pain caused by the condition have been the times when my hands and legs felt as if I had them in vats of boiling oil!

You are clearly entitled to PIP; don't let them bully you into giving it up.

[Jezt52]

I have chronic neuropathy which affects my lower back, legs and arms. There are days when it's a struggle to move, even with my crutches or my sticks. On a load of different meds to keep the pain down and manageable but like many have good and bad days. Went for my PIP assessment and the result was that even though I came in on crutches , as I could still walk I was fit for work. That was two years ago, had to find work as no help from government , bearing in mind that I started work at 16 and since then the only time I had off , apart from a car accident, was that period when I tried to claim. 39 years of contributions, 15 at higher rate, and treated like I'm lying. Never mind that I damaged my spine in a car accident in 1992, never mind that I had Dr's letters, consultants etc backing up the fact that after 20 plus years my body had finally decided that enough is enough and no quantity of pain meds was going to be enough to let me work and provide for my family. No, the fact that I struggled in on crutches was enough for them to declare me fit for work. Well I'm now off ill again as my body has now decided that along with the pain, seizures would be fun as well. One other thing I've found out , naproxen is not supposed to be taken long term as it damages the liver. I also have NAFLD as a result. Hoping that coming off the naproxen will allow my liver to recover. Sorry for the rant, wish you good luck for the future.