Update to my Intro

[Hopinggh]

Hello, again !

I would like to add that i have full blown neuropathy extending even to my face and mouth started from a little tingling in my feet and lips about thirty years ago . With the strongest pain in my feet, it has progressed up my legs and into my arms and hands somewhat as well. I have taken R Alpha Lipoic Acid, benfotiamine, acetylcarnitine, methyl b12, inositol, regular hemp oil, high vit D, 400 mgs magnesium glycinate, curcumin, high doses, biotin, omega 3, eve of primrose oil, l carnitine, dmae, anything i read which could help including sugar lowering supps. I do not know if i have diabetes. All tests will have to wait till im 65 in a very short time. My fasting blood sugar tests revealed 90-100 for many years , free blood tests . I know this is not a fool proof indicator.

ST JOHNS WART was giving relief for a while and CBD was pretty good too. However , they both had pros and cons for me.

The loss of energy and sleepiness, drowsiness is what i feel from all these and, including the PALMITOYLETHANOLAMIDE, even though they claim there is no serious side effects.

I am very hopeful this side effect will subside and the pain will be taken down by PEA !

Good luck to all !

I hope we can find relief and peace.

I will let you know if PEA worked for me in a few months.

[Coastwalker]

Hi again Hopinggh.

Anything to do with nerves/neuropathy, pins and needles, loss of energy, drowsiness too, get your B12 bloods checked.

Sorry, I missed these symptoms as I answered your other post which did not contain your extra symptoms. 🤪😀😀

There is a great book and YouTube film by Sally Pacholok called Could it Be B12 Deficiency? An Epidemic of Misdiagnosis.

Which you might be interested in.

[Hopinggh in reply to Coastwalker]

Thank you so much for your kind response. I have been taking methylcobalamin, 1500mcgs for over five years and more than that when I started this form of B when i studied what vitamins help neuropathy. I also take 6 mcgs a day along with that of the regular B12.

Thank you for your advice and tip. I will be going to the doctor as medicare is soon approaching for me. In the meantime, perhaps I will double up on the meth B 12. I believe I read it is safe to take more.

Have a wonderful day !

[Coastwalker in reply to Hopinggh]

Hi again 😀

Are you taking the intravenous B12 shots Hopinggh ?

If not, do look into them.

Idea only - If you are already supplementing with B12 sublinguals and still suffering all those symptoms, especially neurological symptoms, it might be an idea to get your Homocysteine, MMA and active B12 bloods checked.

Many find they need the B12 shots, because oral B12 does NOT work for them, ( often down to gut issues.) or they cannot process the B12.

B12 shots go directly into our cells which is where the B12 is highly needed.

(You might already be aware of this 😀)

Another idea is to nip across to the ‘PAS (Pernicious Anemia Society) also for those low or deficient in their B12 levels or for those who even suspect they might be.

It is another community site, also here on Health Unlocked.

They have some of the best Vitamin B12 information and advice around.

[Hopinggh in reply to Coastwalker]

Good morning ! Coastwalker !

Thank you for writing and caring!

I have not had B12 injections. Im taking the bioavailable form of B12, methylcobalamin, 1500, and from a multi, the regular cobalamin of B12 at 6mcgs. ..i just checked and i was mistaken as a previous multi i have recently changed from had 1000 mcgs, as per my updated intro, will i will reupdate asap.

Thanks so much for all your tips.

I once tried a sublingual from Jarrow that had methyl b12, best form of b6 and something else. Because of my oral gum issues, i decided i didnt want extra chemicals floating around on my gums.

I just doubled up on my b12 as i read your email.

I will definately be inquiring with my doctor in the future about injections and anything else that might come up on my lab report.

Btw, what is "MMA" stand for ? I am unfamilar with this term.

I appreciate your help and time !

Have a great day and be well, as well !

(Update - Im following the anemic group now. So interesting. Thank you very much ! Im learning so much.

Also, the Jarrow sublingual had methylfolate as well, if i remember correctly now. Im thinking to go back on it. One thought leads to.another....

Hopinggh for always good thoughts!)

[Coastwalker in reply to Hopinggh]

👍⭐️Pleased to hear you are also following the PAS community site too Hopinggh

Idea only - ask members on the PAS site the same questions you asked here on Pain Concern, ?

Taking oral B12 might make your B12 bloods look good, but it doesn’t always mean that the B12 is actually getting into your cells where it is much needed, especially if you still have presenting B12 symptoms.

MMA = Methylmalonic Acid.

Take care 😀

[Hopinggh in reply to Coastwalker]

Thank you ! Stay well..

[Hopinggh in reply to Hopinggh]

Thank you ! And you as well.

(Im awaiting AGMATINE. Hope it works !)

[bear4ble]

I am told that transdermal magnesium spray does assist - hope so!

[Hopinggh in reply to bear4ble]

Heard of that too ! Hope it works for you and please do let us know !