Edit: added an update at the bottom to clarify what I was asking as I think some people missed what I was asking, plus a brief question at the top to make it a bit clearer
Anyone else here extra tired all the time due to the opiate medication they are on for the pain? And possibly more so those that have chronic fatigue as well like myself?
Just trying to find out how you cope and any tips.
I have chronic pain and am currently on fentanyl patches which have been the only pain killer to do a thing for the pain. I also have chronic fatigue and have always been tired all the time but it is much worse on the patches. I have had both for decades unfortunately.
The doc kept increasing the dose to get pain relief but as soon as I found a dose that helped the pain, the tiredness increased.
I started on various medication that did nothing, trying all available medication for pain and then went onto fentanyl patches and steadily increased the dose.
When I hit 50mcg after gradually increasing, I finally started having some pain relief but still got a pain where I had to lay down due to the severity on some days etc, but also got much more tired than before.
Later I then was put on 75mcg which had better pain relief but worse side effects including even more tired so I dropped down to 62mcg where I am now with still good pain killing but still very tired.
I am now super sleepy all the time, sleep a long time overnight and am still tired in the day. I can even nap a few hours after waking as I’m still so sleepy. I have 10-11 hours sleep a night and am crazy tired all day, even as soon as I wake up I am uber tired. Less sleep at night and I am even worse in the day.
I speak to my doctor every 2 weeks and he knows I am tired hence lowering my dose to 62.
How do people cope with this extra level of tiredness? I dropped down a dose but still the same and I know that even if I drop one dose lower I will still be otter but have more pain as that is where I was a while back before I was put on a higher dose.
The doctor told me that all opiates cause tiredness so switching to a different form such as morphine tablets would unlikely help, and that the patches have the least side effects.
He said I have to find a compromise between pain relief and the side effects such as the extra fatigue.
Anyone else similar to me? Tired all the time?
EDIT TO ADD:
I think some people missed the point of my post so added this bit just to clarify.
I am not here for medical advice, I have my doctor every 2 weeks for that.
I am just trying to see if there are others here with chronic fatigue and chronic pain that use opiates for pain relief that are extra tired all the time, or people that are just very tired all the time due to the opiates and finding out how they cope with the extra fatigue.
As I stated before I have tried everything before fentanyl, nothing even touched the pain before the fentanyl, this is literally the only thing that did anything at all for the pain.
I speak to my doctor every 2 weeks also as I have stated before so he knows where I am and any side effects I experience, so I am not asking here for medical information or medication suggestions I am literally only here to find people in a similar situation that have similar problems and what situation they are currently in.
I only want to see if there are others like me and how they cope.
Thanks in advance