Good morning everyone
I am new on here. I have been reading various posts for some time now. I had a decompression on my spine about 6 weeks ago and seem to be living in chronic pain. Also I have been on fentanyl patches which have been changed to Butrans. I would love to hear from anyone, either to say hi or advice. Thank you, Fran ❤️
Morning Fran and welcome on board.
There is usually someone around with advice, support or just an ear to listen. I'm the ear this morning!
My husband was on Fentanyl for over 10 yrs and found them very good. Do you notice a difference?
Pat x
Good morning Pat
Thank you for your reply. I found the Fentanyl patches helped enormously but they were extremely addictive. My friends and family have said that I have changed since taking these patches, I'm not sure they understand chronic pain. I am 55 years old and wonder to myself is this it? Having said that I am a positive person. How did your husband get off the patches please Pat? X
He only came off them cos he'd reached max dose, for him of 100 squillys. The next one up just turned him into a zombie so pain consultant decided to try oxycontin.
At the end of the 72 hrs worth of Fentanyl he took patch off and took the oxycontin.
Yes he did feel rough and felt it may be a too lower dose. GP jiggled him up to 70mg. It was in fact withdrawal which GP said he shouldn't get. Shouldn't!
It wasn't too bad and he's fine now.
As I said he did very well on Fentanyl all those years but everyone is different as keep being told!
x
Thank you Pat
I am determined to get off the Butrans. Was made to feel very bad when I was in hospital. They kept telling me to take patch off but I said I wasn't strong enough after major surgery to go into withdrawal. Well done to your husband. When the GP prescribed them I wasn't told that are addictive although they have helped enormously with the pain x
Are you still in pain? If you didn't have the patch would you need something else?
x
Hi Pat, I am taking gaperpentin, cocodamol, the pain is getting better, it's 6 weeks since surgery. These patches are really good but I just want to get off them. I want to see if surgery has worked, too much to go through and still be on these. Hope this all makes sense? The sun is shining here today, which really helps, Fran x
Got it/ But don't ever be in more pain than necessary. Sounds weird but you will understand.
x