Muscular pain, buttocks, thigh, calves and feet

[Krawlins]

Hello, Happy Easter 🐣

my muscles are burning and painful and I just can’t let them relax. I feel like I want to switch them off. I’ve had this many times since a night out in 2013 at a summer quiz held in a marquee, it was surprisingly damp and I sat on a chair with a metal frame and partially leant over the table (for four hours maybe?) felt like I cut my circulation off and when I went to bed my legs wouldn’t relax and I couldn’t sleep, i took extra Amitriptyline but woke abruptly three or four times with muscle spasms and drop foot, it was so intense, I cried in agony. The following day had weakness in my legs. The intensity of the cramps subsided but even still some 6 years later I get this twitching and inability to relax the legs. Year before I had disc decompression at L5S1 as an emergency as I’d been bed bound and locked in a foetal position for best part of a month. I was left with the inability to point my toes on that left side without producing an intense spasm that took minutes to subside and every time I moved the foot it would cramp again, so over the years I’ve particularly tried to stretch the tendons in that side. My tendons and muscles are so tight and I have 24/7 fasiculations on left side. Tbh the medical profession don’t seem particularly interested, haven’t even been offered an EMG even though neurologist witnessed the twitching. What is a good medication for this as I haven’t found anything that works, only took quinine a month and noticed feet got covered in a dotty red/purple pin prick rash. I know you can’t diagnose but have you had similar pain?

[Bananas5]

Have you tried acupuncture?

x

[Krawlins in reply to Bananas5]

I had half a dozen sessions but back then the muscles weren’t as bad as they are now. I’ll try a few again I think and visit the chiropractor

[NanaFifi]

Hi Krawlins, have you been prescribed a muscle relaxant like diazepam?

[Krawlins in reply to NanaFifi]

Diazepam is not one I’ve tried, I will ask if I can. I have had it really bad for two days in a row, they ache really intensely and apart from walking the dog I just could not be bothered to go out anywhere, I usually jump at the chance but I feel wretched 😕

[NanaFifi in reply to Krawlins]

My back muscles occasionally go into spasm and my GP gives me diazepam which really helps. I hope it works for you too.

[Hidden]

I have burning pain which is RSD for me. Have u thought about acupuncture/Chinese medicine/chiropractic. Drinking more water..warmth from heating pad or bath might help also.

[NanaFifi in reply to Hidden]

RSD?

[Hidden in reply to NanaFifi]

reflex sympathetic dystrophy

[NanaFifi in reply to Hidden]

Need to look that one up 😄

[NanaFifi in reply to Hidden]

Ah, CRPS . . . . . I have a very close friend who suffers from this and she uses diazepam for the spasms

[Krawlins in reply to Hidden]

I wondered what RSD was, I’ve been told I’ve got CRPS so guess similar. I still have the pain now, I do think a bath will help. Thanks all, diazepam and acupuncture next on list

[-Chris123]

Morning

I have exactly the same problem so im hoping that someone answers you..you put it into words much better than I could..thankyou for asking the question that I didn't know how to put into words...i hope you get better soon ive had this for years just being fobbed off by one specialist or another so I will be keeping a regular check on this site and wish you all the best and painfree days!! Good luck

Chrissy

[Krawlins in reply to -Chris123]

Chrissy I had a bath adding a menthol muscle soak (olibas oil) and then took Amitriptyline, it suddenly occurred to me that I stopped this drug when pain management put me on tapentadol but finally I got some relief. Also after the bath I smothered my bottom half in a heat rub. So far so good, I wonder if once I walk the dog it will come back? Good luck to you in finding relief too x

[-Chris123 in reply to Krawlins]

Hello again I do rub everything that hurts with vics !!! I can't have amytriptalline it clashes with my other meds! I have rheumatoid arthritis osteoarthritis. Scoliosis.. syringomyelia (cysts on spine) osteoporosis. Cerebral vascular disease. And the list goes on lol i joke that i have everything ending with an "itus"or an "osis"!!! But do things i can do as i want to keep myself moving as much as i can ..i would love a dog but we arnt allowed them where i live .. i keep myself busy i make birthday cards find things in the charity shops to do up ..i.m in isolation at the moment as just had radioiodine treatment for over active thyroid so ive made a few cards decorated an ornamental birdcage with flowers etc and but it does take its toll om you so i rest up when things start hurting take a tramadol then sit and watch telly lol.. i think keeping my mind active helps me aswell. Im glad you find some relief and a doggy is the best stress reliever in the world your troubles melt away when you're with your best friend!! Sorry im going on i wish you a happy Easter and as much painless days as possible take care 👍👍🌞🌞

[Krawlins in reply to -Chris123]

Oh Chrissy you have a lot to endure there, I love what you're doing with the cards and the charity shop items, what a great thing to do, it helps to have a distraction where you can choose when and how much you do. I struggle at work and only do 16 hours, by the end of my 5 and a half hours I'm usually so uncomfortable with back pain that I'm relieved to go home. I have DDD and facet joint arthritis, asthma, diabetes, diverticulosis, IBS and its tough sometimes. I am so pleased to have my doggy, a walk with her is usually a good distraction but sadly sometimes it can be an aggravator of the pain too. Hope today is a good day for you x

[-Chris123 in reply to Krawlins]

I don't know how you work with such debilitating ailments you are amazing!!! I definitely couldn't think of anything so hard as having a job i bet you are not always fit enough to face it i really admire you for your perserverance and you should get your rest when you can and do what keeps you happy and well and i wish you every happiness in the world take care xx

[Hidden]

Hi Krawlins. Sounds like you could have some trouble with the Sciatic nerve there? It may be worth asking your doc for further investigations? Good luck from a Sciatica Sufferer. 🤞

[Krawlins in reply to Hidden]

Yes Hopalong I do as have recurring bulge at L5S1 and just had a foraminal pain killing injection which funnily enough has helped. My muscular pain was bilateral and so far this morning it’s gone since the bath and muscle rub and resorting back to Amitriptyline! I’m beginning to think it’s linked to the shoes I wear to work which are by no means a high heel 1 1/2 “ but wonder if they trigger the muscle pain. Going to wear my virtually flat but comfortable (soft thick sole) Clarke’s today to see how it goes

[Hidden in reply to Krawlins]

I hope your 'flatties' give you some relief? 🙏 Have you had any physiotherapy?

I had a 'slipped disc' (L4-5) about 30 years ago, but it was left for 13 years before they operated because they were concerned about my having Spina Bifida Oculta? I ended up having to beg for the operation because of the pain, but the damage to the nerve had already been done. I've had 3 injections into the spine, but they've done nothing for me. At the moment I'm waiting for an appointment for another MRI, in the hope there's something new that can be done, as the pain has recently got MUCH worse! 😫

[Krawlins in reply to Hidden]

Did or do you have spina bifida oculta? The injections don't seem to be that great for me, never much success.

So after 13 years did they finally do a discectomy for you? That is what I had but like you damage had already been done. I have been for physio many times for the spine and think I'm going to start doing a back strengthening regime again. Definitely need to strengthen that area. Hope not too long before your next MRI and that if it does show something that you get offered the appropriate treatment without delay x

[Hidden in reply to Krawlins]

Hi Krawlins.

Yes, I was born with Spina Bifida Oculta. But it never bothered me all my life, until I began having these other back problems. After my 13 years of pain, they did attempt a Discectomy, but they realised during the operation that it would be a Laminectomy - it had had time for a spur of bone to grow from my spine, to try to take the pressure off the Sciatic Nerve, so the spur had to be removed to! 😧

I always knew I had a 'dent' at the bottom of my back - where the crease of my buttocks begins, and I have a slight curvature, but that was it! A few years ago, I was very sore in that area, and it turned out I had a Pilonidal Sinus which had burst (I couldn't see what was going on to do anything about it?)! They had to remove a piece of flesh 2cm X 3cm X 3cm, and the wound had to remain open, to heal 'from the inside, out'. For some reason no one could understand, it would NOT heal completely, for over 6 MONTHS, and finally needed compression dressings to do so! I now understand there's far more going on under my skin than I believed..... 😳

Thankyou for your good wishes, and I hope your physio works? I saw in your other post that you've had a long-standing problem over it, but as I said, it's their job to help you? Stay strong. x

[Krawlins in reply to Hidden]

Oh gosh you've been through it, sorry to hear all that. Hope you have some lovely sunny weather where you are and can get out and enjoy it x

[Hidden in reply to Krawlins]

Hi Krawlins. We've had a gorgeous bout of warm weather for Easter, and have been out at every opportunity to enjoy it! We're lucky enough to live in a National Park, and the sun shows it off in all its glory. Unfortunately, having 3 large reservoirs close by, means they have to be kept full, and our weather generally obliges by throwing down plenty of water!

I hope you can get investigations done re your back problems, very soon. Every move we make has to pass through the spine first, and I know how painful it can be, so I hope you can get investigations started to alleviate your pain ASAP!

I hope you had a very happy Easter with plenty of eggs? 🤞🐇

Take care.

[1234Mm]

Turmeric tablets and also vitamin D each day, saunas and Ibuprofen

[trimmso]

Dear Krawlins I am lost for words hearing of your shocking pain and suffering and my thoughts and prayers are with you.

I have no medical advice except for you to tell your attending doctors that you would like them to start treating you with kid gloves and not boxing gloves

I hope you have access are are able to sit in a garden as sometimes being in amongst the noises and the beauty of nature and its wonders can be soothing.

[Krawlins in reply to trimmso]

Thank you kindly x

[6092177588]

Yes, on left side and much in foot. I cannot sleep or get comfortable. Going to new neurologist. Let you know. Happy Easter.

[Krawlins in reply to 6092177588]

Hi, it’s been a while since we chatted on here about our pain, you had similar to me and I just wondered how you got on with your neurology appt?

Kay

[Krawlins]

Yes please let us know, I have seen one and had CT scan of brain twice in my life and an EMG for numb fingers but not to check my left leg?? Don’t suppose I’ll get another chance. Good luck with your appointment

[GrannaOnTheFarm1]

Before you get into the diazepam (Valium) addictive cycle please try Magnesium for your muscle spasms/cramps. Magnesium Oxide or Citrate could well cause loose stools but magnesium gluconate doesn’t. I’m on 750 mg. that I take at night per my docs orders and have virtually no spasms anymore. It will only take a short while before you know it works!!!!

[Krawlins in reply to GrannaOnTheFarm1]

Hi, I'm taking magnesium now as it kept coming up as a suggestion, only been couple of weeks - no change yet but I didn't expect there to be. I am also taking glucosamine with chondroitin and calcium with vit D, hope I'll see some improvement. Thanks for your tip x