Why has it arrived so soon : I've been on pip... - Pain Concern

Pain Concern

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Why has it arrived so soon

slsn71 profile image
44 Replies

I've been on pip standard living allowance since 2016 my award is until October 19 this morning I received a review booklet which needs to be in by November 23 my situation has detoriated since 2016 seem to be getting nowhere has anyone had a review and what happens do they stop your allowance I've been really anxious which is not helping my pain xx

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slsn71 profile image
slsn71
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44 Replies

It's a review to see if you still need it or not, if you are worse than before you shouldn't lose it.

If you have to tell them how you are these days, think of the worst day you have had because of your sickness and explain that its how you feel every day.

slsn71 profile image
slsn71 in reply to

Thank you i have more worst days so hopefully they will listen because you hear so many stories about them its frightening it feels a million years away since my first assessment it's bringing back that sick and anxious feeling x

in reply to slsn71

Just think of your worst days and tell them it's like that everyday.

I wish you the best.

slsn71 profile image
slsn71 in reply to

Thank you I've got couple weeks before they want it sent in so il fill it in and try and forget about it if possible my present award doesn't finish till next October so I'm not sure when they will ask me to come for the review but thanks for your advice you've been really helpful

in reply to slsn71

You are welcome.

Millie09 profile image
Millie09

Try not to worry, I know easier said than done, I was awarded high rate living and mobility allowance last October, will be due to end April 2020 , I did read somewhere that DWP send out a form so as you can prove to them that you have been trying to work with professionals ie .dr / hospital etc and not just reaping the extra pay for nothing, I have just had an ESA form to complete, yet I have been in the support group now for 6 yrs , yes I was worried, but as my pain and my condition is worse I know I have full support to send , I suppose they are fishing out the real claimants

As Jimmyjimmy said , think of every day as your worse day when competing the form , do you have anyone who can do it for you?

I'm sure all will be fine. 🙂

slsn71 profile image
slsn71 in reply to Millie09

My partner is fantastic and is also my carer he came to my first assessment in 2016 and i was awarded standard rate which I was very happy about ,but my consultant at the orthopedic in Northfield us saying that they don't want to give me the two hip replacements that I need because I'm only 47 aswell as degenerative disc disease and other stuff going on they want the firm back by the 23 November my award suppose to finish next October so not really sure what happens next but I have got slot of support from my partner and kids

Millie09 profile image
Millie09 in reply to slsn71

Thats great you have lots of support! .I can relate to your pain ,since I was diagnosed with osteoarthritis and osteopenia in my left hip, degeneration of the joint, I have been living with the awful pain of two prolapse discs, tried physio, no chance ! Could not do.the exercises, I cant take painkillers due to another chronic illness, tried gabapentin but it made me feel awful.

Next step is city hospital Dudley rd , 23 Nov pain management? .like yourself, you have nothing to worry about regards to pip , whenever the assesment will be ..hope all goes well

slsn71 profile image
slsn71 in reply to Millie09

Thank you for your reply it has helped me loads and it's good to know that there's so many people on this site in very similar circumstances who can give good advice because that makes a big difference x

Millie09 profile image
Millie09 in reply to slsn71

your not on your own on this forum,, I have been on here for a few months now but only in the background, not posts as yet but I'm sure there will be 🙂.you take care sisn71, keep in touch x

slsn71 profile image
slsn71 in reply to Millie09

I will thanks for your support doesn't feel so daunting when I'm able to talk to people in similar circumstances it makes a big difference to me x

They need to also contact your GP and any Specialists before they can give you an appointment. They also be asking you to fill in your paperwork to describe your illness and medications you need to take. All I can suggest is be honest and take a copy of the report you sent into DWP ?. That will give you the chance of referring to what you wrote on your explanation.

The problem these days is they want to know what you can do , not what you cannot do this makes the whole process very stressful. The appointment works on a points system. Someone on site here may be able to help regards this process.

BOB

slsn71 profile image
slsn71

Thank you for your advice I will definitely take a copy of the review form

Chicy profile image
Chicy

Yr review is just like the start all over again im afraid to say....gather as much evidence to let them know yr condtion has changed for the worse. Yr award can increase.stay the same or not awarded at all im afraid to say. This is normal to get yr letter just now for review seemingly. Hope you feel better soon.

slsn71 profile image
slsn71 in reply to Chicy

Thank you and me my partner said don't worry whatever happens happens I do try but fail miserably but IL tell them as it is which is crap but in more detail but thanks for the heads up wasn't sure how a review works x

Chicy profile image
Chicy

Let them know how yr worst day affects yr daily living.....try and get a few letters of support even if its family. I had a f2f a few wks ago and the hp admitted she cant go against supporting evidence..gd luck n dont stress id say the hardest part is over for you.....you could increase though if yr worse....

slsn71 profile image
slsn71 in reply to Chicy

I will try my best how long before you find out the outcome ? I hope you get what you need x

Inso profile image
Inso

The letter should not be replied to straight away,seek professionals advice in completing it.

Titchyj profile image
Titchyj

You can also ask for a home assessment if you feel it would make your symptoms worse if you need to travel for it or if you have mobility issues.

Good luck, I’m sure you will be fine.

Jan

slsn71 profile image
slsn71

I asked for a home assessment last time and was turned down which makes me really anxious to ask again I just want this nightmare over with as it making me feel like s**t

Millie09 profile image
Millie09 in reply to slsn71

They should not turn you down for home assessment, I told them I needed one or i could not carry on with the claim.x

Standard procedure in afraid to review year before due to end

Millie09 profile image
Millie09 in reply to

Why do they ask 12 months in advance? If that's the case I will receive mine soon, just had an ESA support groups review form , been 4 yrs since I first started ESA, but my health has deteriorated since..

slsn71 profile image
slsn71 in reply to

Do you know how long it is that you hear from them after they get the form and your assesment (if your unlucky enough to have to have another one) my form has to be there by 23 Nov ?

Millie09 profile image
Millie09 in reply to slsn71

I have no idea , it's bad enough completing my ESA form , that has to be in by 29 November, but I have my first pain management clinic on 23 Nov, oh I m sure I will receive a pip renewal 🙄 . Hope it gets all finished with before Christmas!! for you 🤞

slsn71 profile image
slsn71 in reply to Millie09

And you too hopefully fingers crossed just take each day at a time good luck and hope your pain management goes ok x

Millie09 profile image
Millie09 in reply to slsn71

Thank you! hope all goes ok for you hun .keep us posted x

in reply to slsn71

Unfortunately I don't as it varies so much.

JerryR profile image
JerryR

Hi slsn71,

Have you heard of a web site called ‘benefits and work’ (benefitsandwork.co.uk)?

If you haven’t, take a look. Their advice is second to none. If you subscribe to them (£20 per year) you get access to a load of guides to help you filling our DWP forms. The PIP guide is fantastic. It has tips on what to say on forms and how to get home assessments if they initially refuse one. It’s well worth the money. (I’m not on commission!)

Hopefully what they say will help. Their advice helped me greatly with my claim and appeal.

Good luck!!

Millie09 profile image
Millie09 in reply to JerryR

Fab site ! Thank you for bringing that to our attention, some very very helpful information.

slsn71 profile image
slsn71

I have yes was on thier site yesterday read some views and opinions of people's experiences concerning the review forms and home assesments so it's give me good for thought

phil4u profile image
phil4u

Good luck as I have a similar situation, I also have to have an assessment form back by the 26th of this month, I also have been told to tell them about my health on my worst day so I have been advised.

slsn71 profile image
slsn71

Me too which is every day near enough I just want it over with I hope your assessment goes well and you get a good outcome

healthygenes profile image
healthygenes

Hi exactley the same happened to me, I lost my high mob, (I knew it when I refused a wheelchair) pride eh! but they gave me the high care, when I'd been on standard,so remember if they offer you anything take it,wheelchair /water etc, your interveiw maybe upstairs, further down the corridor, just use your common sense, if it dosent sound right then it isn't, they're not your freind they are there to stop your benefit, no! we should not have to resort to this, but I'm afraid they are determined, so you have to be MORE determined, best of luck.

slsn71 profile image
slsn71

Thanks for the he good advice will definitely watch out for everything they do say or ask

latchy profile image
latchy

I had my review in July moving from DLA to PIP. It took 2 months to get an appointment with capita. I was on the lowest rates of DLA for 8 years and never had an assessment. My condition had deteriorated slightly. They didn't stop my DLA until a decision was made on my PIP. I got the higher rate of both elements much to my surprise. So no they shouldn't stop your money. I recently had an ESA reapplication too and it took two months to get a decision. Then the dreaded brown envelope arrived two weeks ago and I'm still in the support group with the severe dissabilty enhancement. So I can relax now. But they didn't stop any payments while processing my applications. Hope that puts your mind at rest.

slsn71 profile image
slsn71 in reply to latchy

Forgot to ask the supportive evidence I mentioned didn't come until two weeks after I needed to send my review off so not sure if I have to send it to them or hold on to it for the assessor ? X

latchy profile image
latchy in reply to slsn71

I would hold onto it for the assessor if you've sent your PIP forms off. Fortunately I'd got all mine so sent it with the form. They will read and scan it into the computer for the decision maker at the DWP.

slsn71 profile image
slsn71 in reply to latchy

Not sure if it will go against me as they could make Thier mind up without the evidence I have but I'm trying best not to think about it as it is getting me down and sending my anxiety levels through the roof x

latchy profile image
latchy in reply to slsn71

I'm sure you know all about the DWP, they were made to make you worry. I used to work for them as a decision maker many years ago. If it makes you feel better phone the DWP line and ask whether you should send it off. As in my case you may not need a face to face assessment. They'll advise you what to do as CAPITA/ATOS may have the completed form already. X

slsn71 profile image
slsn71 in reply to latchy

Yes I think I will do that thanks for your advice and support very much appreciated x

latchy profile image
latchy in reply to slsn71

You're very much welcome. Let me know what they say. Gone are the days where you used to be able to call each job centre plus ☹ x

slsn71 profile image
slsn71 in reply to latchy

I will thank you x

slsn71 profile image
slsn71

It does thank you it can take up to 8 weeks for them to send me an appointment with an assessor so we see I just got some more supportive evidence from my consultant saying there not going to operate (I need new hips on both sides ) also there going to refer me me to spine clinic for L4/5 disc bulge and I'm also waiting for my English and nerve tests as these constant pins and needles all on my left side and my head is driving me mad sorry for going on feeling bit fed up today x

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