Pain Concern
23,512 members7,946 posts

Why has it arrived so soon

I've been on pip standard living allowance since 2016 my award is until October 19 this morning I received a review booklet which needs to be in by November 23 my situation has detoriated since 2016 seem to be getting nowhere has anyone had a review and what happens do they stop your allowance I've been really anxious which is not helping my pain xx

35 Replies
oldestnewest

It's a review to see if you still need it or not, if you are worse than before you shouldn't lose it.

If you have to tell them how you are these days, think of the worst day you have had because of your sickness and explain that its how you feel every day.

3 likes
Reply

Thank you i have more worst days so hopefully they will listen because you hear so many stories about them its frightening it feels a million years away since my first assessment it's bringing back that sick and anxious feeling x

4 likes
Reply

Just think of your worst days and tell them it's like that everyday.

I wish you the best.

2 likes
Reply

Thank you I've got couple weeks before they want it sent in so il fill it in and try and forget about it if possible my present award doesn't finish till next October so I'm not sure when they will ask me to come for the review but thanks for your advice you've been really helpful

Reply

You are welcome.

1 like
Reply

Try not to worry, I know easier said than done, I was awarded high rate living and mobility allowance last October, will be due to end April 2020 , I did read somewhere that DWP send out a form so as you can prove to them that you have been trying to work with professionals ie .dr / hospital etc and not just reaping the extra pay for nothing, I have just had an ESA form to complete, yet I have been in the support group now for 6 yrs , yes I was worried, but as my pain and my condition is worse I know I have full support to send , I suppose they are fishing out the real claimants

As Jimmyjimmy said , think of every day as your worse day when competing the form , do you have anyone who can do it for you?

I'm sure all will be fine. 🙂

1 like
Reply

My partner is fantastic and is also my carer he came to my first assessment in 2016 and i was awarded standard rate which I was very happy about ,but my consultant at the orthopedic in Northfield us saying that they don't want to give me the two hip replacements that I need because I'm only 47 aswell as degenerative disc disease and other stuff going on they want the firm back by the 23 November my award suppose to finish next October so not really sure what happens next but I have got slot of support from my partner and kids

3 likes
Reply

Thats great you have lots of support! .I can relate to your pain ,since I was diagnosed with osteoarthritis and osteopenia in my left hip, degeneration of the joint, I have been living with the awful pain of two prolapse discs, tried physio, no chance ! Could not do.the exercises, I cant take painkillers due to another chronic illness, tried gabapentin but it made me feel awful.

Next step is city hospital Dudley rd , 23 Nov pain management? .like yourself, you have nothing to worry about regards to pip , whenever the assesment will be ..hope all goes well

Reply

Thank you for your reply it has helped me loads and it's good to know that there's so many people on this site in very similar circumstances who can give good advice because that makes a big difference x

1 like
Reply

your not on your own on this forum,, I have been on here for a few months now but only in the background, not posts as yet but I'm sure there will be 🙂.you take care sisn71, keep in touch x

1 like
Reply

I will thanks for your support doesn't feel so daunting when I'm able to talk to people in similar circumstances it makes a big difference to me x

2 likes
Reply

They need to also contact your GP and any Specialists before they can give you an appointment. They also be asking you to fill in your paperwork to describe your illness and medications you need to take. All I can suggest is be honest and take a copy of the report you sent into DWP ?. That will give you the chance of referring to what you wrote on your explanation.

The problem these days is they want to know what you can do , not what you cannot do this makes the whole process very stressful. The appointment works on a points system. Someone on site here may be able to help regards this process.

BOB

1 like
Reply

Thank you for your advice I will definitely take a copy of the review form

1 like
Reply

Yr review is just like the start all over again im afraid to say....gather as much evidence to let them know yr condtion has changed for the worse. Yr award can increase.stay the same or not awarded at all im afraid to say. This is normal to get yr letter just now for review seemingly. Hope you feel better soon.

Reply

Thank you and me my partner said don't worry whatever happens happens I do try but fail miserably but IL tell them as it is which is crap but in more detail but thanks for the heads up wasn't sure how a review works x

Reply

Let them know how yr worst day affects yr daily living.....try and get a few letters of support even if its family. I had a f2f a few wks ago and the hp admitted she cant go against supporting evidence..gd luck n dont stress id say the hardest part is over for you.....you could increase though if yr worse....

1 like
Reply

I will try my best how long before you find out the outcome ? I hope you get what you need x

1 like
Reply

The letter should not be replied to straight away,seek professionals advice in completing it.

1 like
Reply

You can also ask for a home assessment if you feel it would make your symptoms worse if you need to travel for it or if you have mobility issues.

Good luck, I’m sure you will be fine.

Jan

1 like
Reply

I asked for a home assessment last time and was turned down which makes me really anxious to ask again I just want this nightmare over with as it making me feel like s**t

Reply

They should not turn you down for home assessment, I told them I needed one or i could not carry on with the claim.x

Reply

Standard procedure in afraid to review year before due to end

1 like
Reply

Why do they ask 12 months in advance? If that's the case I will receive mine soon, just had an ESA support groups review form , been 4 yrs since I first started ESA, but my health has deteriorated since..

Reply

Do you know how long it is that you hear from them after they get the form and your assesment (if your unlucky enough to have to have another one) my form has to be there by 23 Nov ?

Reply

I have no idea , it's bad enough completing my ESA form , that has to be in by 29 November, but I have my first pain management clinic on 23 Nov, oh I m sure I will receive a pip renewal 🙄 . Hope it gets all finished with before Christmas!! for you 🤞

Reply

And you too hopefully fingers crossed just take each day at a time good luck and hope your pain management goes ok x

2 likes
Reply

Thank you! hope all goes ok for you hun .keep us posted x

Reply

Unfortunately I don't as it varies so much.

1 like
Reply

Hi slsn71,

Have you heard of a web site called ‘benefits and work’ (benefitsandwork.co.uk)?

If you haven’t, take a look. Their advice is second to none. If you subscribe to them (£20 per year) you get access to a load of guides to help you filling our DWP forms. The PIP guide is fantastic. It has tips on what to say on forms and how to get home assessments if they initially refuse one. It’s well worth the money. (I’m not on commission!)

Hopefully what they say will help. Their advice helped me greatly with my claim and appeal.

Good luck!!

2 likes
Reply

Fab site ! Thank you for bringing that to our attention, some very very helpful information.

Reply

I have yes was on thier site yesterday read some views and opinions of people's experiences concerning the review forms and home assesments so it's give me good for thought

1 like
Reply

Good luck as I have a similar situation, I also have to have an assessment form back by the 26th of this month, I also have been told to tell them about my health on my worst day so I have been advised.

Reply

Me too which is every day near enough I just want it over with I hope your assessment goes well and you get a good outcome

Reply

Hi exactley the same happened to me, I lost my high mob, (I knew it when I refused a wheelchair) pride eh! but they gave me the high care, when I'd been on standard,so remember if they offer you anything take it,wheelchair /water etc, your interveiw maybe upstairs, further down the corridor, just use your common sense, if it dosent sound right then it isn't, they're not your freind they are there to stop your benefit, no! we should not have to resort to this, but I'm afraid they are determined, so you have to be MORE determined, best of luck.

Reply

Thanks for the he good advice will definitely watch out for everything they do say or ask

Reply

You may also like...