Hi. I'm Emma and i've just joined this site. Just filling in the initial questionnaire has left me feeling alone, as each condition I have that I typed in, came up with 'no match'. Really fills a girl with confidence.
Anyway, here goes. I suffer with;
Antiphospholipid Syndrome with genetic Factor V Leiden,
Chondromalacia Patella bilateral,
Prolapsed discs, L4-L5, L5-S1,
Chronic hip pain bilateral,
Tendonitis in wrists,
Brain suffers electrical fits without the physical seizure,
That covers most things, without going into the less problematic issues.
I've suffered with knee pain since I was 11 years old, and over the years have gained all the other conditions. It may sound like I must be in my retirement years, but i've just turned 37.
My life has been massively restricted due to the varying conditions, and although I have three wonderful children, I feel bad that I can not do for them what a "normal" mum can do. Instead, my eldest child especially has had to step.into a caring role for me over the years, which has taken its toll on him.
It's difficult coping with the levels of pain I have. I used to be on morphine, but was taken off of this over a year ago as I had been taking it for nearly 16 years. Unfortunately the pain meds I now take do not cover the pain, and so I am left to manage it myself. I do have wonderful gp's and they've all taken the time to familiarize themselves with my conditions so I am not limited to only one gp.
Its hard to cope at home as I feel useless not being able to do much, and I don't think my partner really understands just how exhausting being in pain is.
It would be great to speak to others in same or similar situations, and find out how others cope.