FUNCTIONAL NEUROLOGICAL DISORDER

[DALLYSALLY]

I sometimes suffer such bad symptoms with this that it mimics a stroke or TIA , and I'm paralysed on my left side, ending up being hospitalised: but I feel that as an mri scan is rarely done.Does anyone else suffer this and have trouble with doctors listening to them.

[Mary-intussuception]

I've often felt that some doctors aren't listening. And am sure there have been those who don't believe me (that I actually do have all my conditions ) . Some eliminate a diagnosis they considered by a scan or test but then don't keep on looking till they find out the real cause of symptoms / diagnosis.

It's also my left side that is worse effected by my severe C - spine conditions.

I hope they do get around to giving you the MRI scan.

It's such a relief when the symptoms pass isn't it. And we can have a little "normal " life activity - for a while .

[DALLYSALLY in reply to Mary-intussuception]

Thank you for your reply..Yes they do that. Also they give you the same diagnosis all the time even when you say that things have changed and that it's "not "normal for me " as it's just easier to give the same diagnosis. I am now getting an mri scan as wasn't happy with the ct brain I had in hospital as was in for 2 weekly admissions recently.. as it doesn't show minor bleeds or TIAs. They are only doing it as an outpatient to pacify me.. as with a history of a previous splenic blood clot and 2 parents with stroke history I thought an mri was needed but know it's expensive and hospitals in UK avoid then whenever possible.

[Mary-intussuception in reply to DALLYSALLY]

It's good to hear you're going to have an MRI scan as I understand that CT scans don't pick up TIAs or silent strokes.

[johnsmith]

You say: "I sometimes suffer such bad symptoms with this that it mimics a stroke or TIA and I'm paralysed on my left side". This sounds frightening. You are able to see a doctor. The doctor sees you in good health. So the doctor thinks you are making it up or have some mental problem. The doctor probably ignores the mental problem caused by the stress of the condition you have.

Step 1. You may have a tumour which presses on a nerve root bundle. MRI to eliminate this.

Step 2. You may have something which cause temporary loss of blood/nutrient to nerve root bundle. MRI to eliminate this.

I am not a doctor. So language of above is very approximate and not exactly accurate. But the two points should be markers to possibly suing doctor for negligence if the doctor fails to take action and sometime happens permanently.

It is worth seeing an Alexander teacher to see if better use of muscles and posture improves your situation. Improved muscular usage will help reduce the feelings of anxiety that you are experiencing.

Still remember a psychiatrist saying the loss of function in my right arm was due to a personality disorder. The MRI scan showed that I had extended discs in the neck which impinged on nerve roots.

Hope I have been able to be helpful.

[DALLYSALLY in reply to johnsmith]

Thanks John... I wasnt very explanatory as have most of above too protruding and cervical disc herniation tho worse on right side and a shoulder imingement. I Have also been seeing a psychologist for 2 years who cannot find any link to my problem. Both my parents have had strokes and ive had a blood clot in my spleen so had my spleen removed in 2012 being necrotic. Usual even when not paralysed I cannot walk properly or balance and have left sided weakness and a slight facial droop it's a weird disorder and horrible when it occurs as a major episode as I can't stand up or raise my arm for a week or so or speak for days. I sometimes get a ct scan but know this does not show minor bleeds of the brain like TIAs.

[johnsmith in reply to DALLYSALLY]

Thanks for the reply.

You say: "...too protruding and cervical disc herniation tho worse on right side and a shoulder imingement."

You say: "Usual even when not paralysed I cannot walk properly or balance and have left sided weakness and a slight facial droop"

healthline.com/health/facia...

What is Bell’s palsy?

Bell’s palsy is a condition that causes a temporary weakness or paralysis of the muscles in the face. It can occur when the nerve that controls your facial muscles becomes inflamed, swollen, or compressed.

The condition causes one side of your face to droop or become stiff. You may have difficulty smiling or closing your eye on the affected side. In most cases, Bell’s palsy is temporary and symptoms usually go away after a few weeks.

Worth seeing and Alexander teacher and McTimony chiropractor.

The human body is an engineering system. I suspect that your problems may be due to compression of the spinal nerve roots and the body's system response to the situation. All one can do is investigate. MRI scans and CT scans do not show muscle response which can tighten onto nerve roots causing your weakness. What I am saying may or may not be correct. It is something that medical people do not know much about.

Google "Thomas Myers". You may find something of interest. There is something called Fascia which affects a lot of things. It may have some relevance to your situation.

[runningbear1]

HI Dallysally this one of those disorders that no test will diagnose. I was told when I had all the test it was to rule out the what I don't have to be sure of what I do have if that makes every test came back normal, bloods, MRI's CTscans, and I was getting frustrated. On average I fall 2 to 3 times a week, have had 5 Severe Tremors in the last 4 weeks and have been told I can not work again. Im 58 live in Australia the blessing for me is Family and a good medical team on all levels.

FND can show in many ways and I would encourage you to do as much research as possible because sometimes you need to educate the Doctors also. All the best.

[DALLYSALLY in reply to runningbear1]

Thanks for your reply, I've not heard from anyone else with FND. The horrible think I find about it is its unpredictable, which means as you say you can't work. There are many factors of it as I've been suffering since it started in 2008, I'm also now 58. was originally diagnosed with migraines even though never had any before. Then FND when it got worse and I suffered shaking and paralysis and co-ordinaton problems. I totally agree that you have to educate many doctors and other people, including the English benefits system who cannot get to grips with this problem. Spent separate 2 weeks in hospital with paralysis last year and the occupational therapists were surprised when I started to get feeling back in my arm and leg on day 6 and tried to get up myself on crutches. There is so little understood about this condition on a normal ward. Good luck to you too, it means everything to have family support.

[Lulubee]

Have you joined the FND group on Health Unlocked? You might find a lot of people there who understand what you’re going through?

[DALLYSALLY in reply to Lulubee]

No I didn't know there was one.. Thanks a lot, I will join it.. Need all the support I can get.

[Lulubee in reply to DALLYSALLY]

healthunlocked.com/fndhope