Neurological pain and Lumbarsacral Plexopathy

[Viklou]

I've had this condition for a couple of years. My lumbosacral plexopathy is idiopathic in nature but causes horrendous nerve pain down my left leg and into my foot I also have a bulging disc which is now affecting my right leg and hip and sends shooting pains down my Ieg. I can't stand or walk for long. Currently taking Pregabalin 3x a day and tramadol at night. I'm under neurology at Salford Royal and also have an appointment with the spinal surgeon in January. I've just started with bladder issues as once I get the urge to pee I have to go as I can't hold it any more. Night time is the worst pain wise, as it often wakes me up. My concerns are this bladder thing as I'm just constantly worried now that I'll wet myself and there's nothing I can do about it

[Manukalover]

Bless you. XX

[PainConcernProjects Partner Community Champion Pain Concern]

Hi Viklou,

Sorry to hear you are having various health issues and concerns. You mentioned you have recently started with bladder issues and concerns. Have you brought these new concerns to the attention of your GP or other health care professional? They will be best placed to give you medical advice.

I hope your upcoming medical appointments are helpful for you. You may like to consider using our self navigator tool, which aims to aid discussion between patients and health care professionals painconcern.org.uk/product/...

-Pain Concern Admin

[OSTEOARTHRITISRA]

Hi as above I'd see gp about the pain

And sleep issiuese to try get under control or levels brought down

If long term

Everyone different though

A

Sleep med

May help low dose to start working up to wot suits

If doc allows

Not sure if doc may allow

My self

I got

Tramadol halted after seeing a pain nurse and said enough is enough went on too long and nurse aske doc if can change meds and a sleep med brought in and at same time got Pregablin put upto max dose 600mg a day and tramadol halted completely at same time , No tapering needed they said a way of tapering

It did help

And allowed to adjust the pregablin i.e 200mg 3 times ,or if severe at night 1x200mg day and at night 2x200mg with sleep med

All with docs instructions and approval

Everyone different though

I'd see doc Asap if you can try get night time under control

[Davewm]

Hi Viklou

I’m sorry for all your problems. I was under the Pain Management Clinic for 3 years.

They tried everything on me, Pregabalin, Gabapentin, Tramadol etc:

Because I have Heart Failure and Severe Spinal Stenosis I’m limited to what pain relief I can take - non of the aforementioned did anything for the pain and I finished up on Oramorph (liquid morphine) and Zomorph. This also didn’t help and I have had 2 hospital admissions for severe constipation and bladder urine retention.

I’m also fearful of Cauda Equina which is the problem caused through crushing of the nerves which means you lose bladder and bowel control.

I do hope you get your problems resolved.

Kind regards

David

[Viklou in reply to Davewm]

I'm allergic to oramorph sadly so I have to be careful. I'm constipated but take laxatives which help on that side of things. I also have severe spinal stenosis. I also have small bowel crohn's disease so it's a balancing act

[Dunstablian]

Sorry to read of your pain. i have spinal degeneration in my neck and lumber region too. In daily pain sitting or lying down but strangely i can walk 3-5000 steps without too much pain. However, my GP has yet to agree to refer me to a spinal clinic for assessment of treatment of any kind. I am stuck on 30mg Oxycodone daily supplemented by over the counter pain relief. Hopefully you will get some relief after your consultation with the Spinal Clinic.

John

[LoveCaneCorso]

Hiya,

First sorry to hear your troubles, chronic pain is horrendous.

All I can say is my experience my spine c5,c6,c7 degenerated trapping nerves so I’d get as you do but down my arm & shoulders (can’t have surgery to dangerous) Opiates never helped with my nerve pain, other pain yes. I get Pregabalin, but they often also prescribed amitriptyline, noratriptyline (family). Also have a friend whom it helps with low disc bulge degeneration. Good for nerve pain & helps sleep. Non addictive .

Sorry, I’m the opposite with the urine I struggle to go. So no experience.

Glad you will be seeing surgeon team soon.